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adenocarcinoma ( 4 CM) esophageal cancer stage IV

kenandme2
Posts: 3
Joined: Aug 2013

My husband was diagnosed with adenocarcinoma ( 4 CM) esophageal cancer  stage IV which has spread to a lymph node in his neck also. Though so far it has not spread to any other organs.

He is currently finishing his first round of chemo (surgery is not an option)

They have him on Oxaliplatin and Capecitabine. Any one else dealing with a similar situation?

it's just so scary not knowing how much time we may have. He feels ok but has lost about 15 pounds in a month.

Already seems to have a better appetite (for some things) and his throat isn't bothering him much at all.

He also says that the tumor in his neck lymth node feels smaller already.

Can that really happen after only one round of chemo? (he's on 15 days, including 1st IV day, 0ff 7 then we start round two.)

Would appreciate any input.

 

Thanks,

 

Lori

Deathorglory
Posts: 59
Joined: Jul 2013

Hello.

I'm unfamiliar with capecitabine, but I know that oxaliplatin is hard core stuff.  I had that and am still (fortunately) enjoying some of the side effects.  You leave out a lot of pertinent information that could help folks here help you further.  Things such as, where are you receiving treatment, why is surgery not an option, was he tested for HER2/NEU, are there other medical complications.  I know that you feel overwhelmed by what you have to deal with,  but the more you are able to share, the more folks here are likely to see similarities to their own situations and can share back.

Ed

callerid
Posts: 99
Joined: Dec 2012

Capecitbine is the oral chemo pill known as Xeloda

kenandme2
Posts: 3
Joined: Aug 2013

Hi Ed,

Thanks for getting in touch. I did not know what HER2/NEU was until I just now looked it up. I will definately ask our Oncologist when we see him in a little over 2 weeks for round 2 treatment.

We are receiving treatment at Virgina Mason In Seattle, which is supposed to be one of the best.  We were told that surgery was not an option because it had metastisized to a distant site. My Husband has no serious medical conditions other than being over weight (not morbidly obese) and has high blood pressure.

We were told that this was strictly pallative care and that using the combination of chemo he is receiving can cause remission (but from what I have read the remissions last for 2-8 months only) But that would still be great as long as he stays comfortable! 

He says his swallowing is already better and is not having as much pain in his chest. His Barret's was never diganosed because he has never really suffered from Gerd.

His Mom and Grandmother died of "Stomach" Cancer. I now wonder if Esophageal cancer is what took their lives. His Mom has been gone since 1990 at age 70. 

And his Grandmother passed in the late 1970's.

Deathorglory
Posts: 59
Joined: Jul 2013

Hello,

 

Not having other medical stuff going on is big.  EC, especially Stage IV is HUGE, other stuff is a serious detriment to effective treatment of the EC.  I'm unfamiliar with Virginia Mason, but I'm from Philly, so you're probably unfamiliar with Thomas Jefferson University Hospital, too.  I will suggest that it is EXTREMELY important to have top notch doctors dealing with this.  You don't want to be dealing with docs who are going through on the job training.  

 

Stage IV EC calls for pallative care and clinical trials as the ordinary standard of care.  That's not the sort of thing you want to hear.  I'm a stage IV guy, who was given 7-8 months to live in October 2011.  I'm currently clean on all tests and doing better than ever expected.  It can happen.  It can be you.  Don't ever think otherwise.  My escape route was that I was Her2 +, which led to an effective treatment.

 

I wish you similar success.

 

Ed

 

 

callerid
Posts: 99
Joined: Dec 2012

My husband was on that regimen along with Herceptin for HER2.  His side effects were minimal but unfortunately so were its effects on the cancer.  Everyone responds differently to the protocols

kenandme2
Posts: 3
Joined: Aug 2013

I am sorry to hear you are going through this also. Is your husband's Adenocarcinoma too? Has it metasticsized?

eternalife
Posts: 36
Joined: Apr 2013

Hello,

My husband was diagnosed with stage iv EC, Dec, 2011, he took Xeloda, herceptin and other chemo drugs + radiation, no surgery. It was a roller coaster ride at times. He passed away , 6 weeks ago.

Enjoy the time together, there are not enough words to express this type of cancer journey.

Be good to yourself and conserve some energy...

 

Best wishes to you and your loved one.

baybuny
Posts: 1
Joined: Sep 2013

Lori,

Your husband's situation sounds very similar to my husband's. He was diagnosed about 6 weeks ago, with NO typical EC symtoms. We had him checked because of a lump right near the collarbone. His initial diagnosis was poorly differentiated carcinoma with neuroendocrine features with an unknown primary. He started on a treatment of cisplatin and etoposide, and went through one round.

However, his treatment plan has been changed once they did a CT/PET scan and found an adenocarcinoma in the esophagus. With the now-known primary, they are switching his chemo to cisplatin, epirubicin, and 5-fu. The tumor in his neck area did shrink dramatically after just one round, so that doesn't surprise me. Obviously, surgery is not an option for him. 

We are going to City of Hope in Southern California on Tuesday to meet with an EC specialist and get a second opinion regarding treatment. I'd be interested to know your husband's progress with his treatment, and I will hope for the very best for you both. Take care.

 

 

goty2001
Posts: 71
Joined: Jul 2012

I had a similar diagnosis 16 months ago, spots on neck AND liver, non-operable, and started with similar treatment. Then I was tested Her2+, began herceptin ... and am now in remission.  There is hope.

Dad'sfight
Posts: 155
Joined: Feb 2013

Have him tested for HER2, my father is stage 4, he tested postive. 1st time in 2/2013 he didn't. 6/2013 after they found cancer spread to hip and spine, lesion on hip tested positive. I hope my father gets remmission with Herceptin :)

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