Aug 06, 2013 - 7:54 pm
Finally got in a little while ago.
The preliminary "OFFICIAL" good news is I'm.....
The final reads won't be available until tomorrow but the PET department told my RO they saw nothing that raised any red flags and that it looked good to them. My scope looked great overall.
Swallow study went well and I'm where they expect me to be at this point. There's still some swelling of my throat and tongue as well as my vocal chords which explains why my singing voice isn't back yet.
PEG is gone!
We discussed weaning me off the meds. Easy enough plan... I'm only taking 5mg of oxy twice a day and every once in a while a third dose. Start this week and stick to two doses for the next two weeks, then cut that in half for the following two weeks and then to once a day and then go off, only taking one if really needed. Start taking over the counter pain relievers (ibuprofen 400-600mg) for body ache.
So overall a good day.
What I find unusual is that I asked about future scans and none are planned. I'll be scoped every three months for the next two years but unless they see something unusual or I develop symptoms that warrant it, they won't be doing another PET. When I asked why, they said they've found that it results in too many unnecessary procedures. They may order a yearly CAT scan but that's about it. They're very confident they erdicated the beast from me and I'll take that anyday!
Positive thoughts and prayers