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Hit the Road Jack!.........

fishmanpa's picture
fishmanpa
Posts: 1067
Joined: Jan 2013

Hi Folks,

Finally got in a little while ago. 

The preliminary "OFFICIAL" good news is I'm.....  
Mr Clean

The final reads won't be available until tomorrow but the PET department told my RO they saw nothing that raised any red flags and that it looked good to them. My scope looked great overall.

Swallow study went well and I'm where they expect me to be at this point. There's still some swelling of my throat and tongue as well as my vocal chords which explains why my singing voice isn't back yet. 

PEG is gone!

We discussed weaning me off the meds. Easy enough plan... I'm only taking 5mg of oxy twice a day and every once in a while a third dose. Start this week and stick to two doses for the next two weeks, then cut that in half for the following two weeks and then to once a day and then go off, only taking one if really needed. Start taking over the counter pain relievers (ibuprofen 400-600mg) for body ache. 

So overall a good day.

What I find unusual is that I asked about future scans and none are planned. I'll be scoped every three months for the next two years but unless they see something unusual or I develop symptoms that warrant it, they won't be doing another PET. When I asked why, they said they've found that it results in too many unnecessary procedures. They may order a yearly CAT scan but that's about it. They're very confident they erdicated the beast from me and I'll take that anyday!

Positive thoughts and prayers

"T"

 

 

wolfen's picture
wolfen
Posts: 1125
Joined: Apr 2009

T,

 This is wonderful news and I'm so happy for you. Now, continue on with this business of "living". You have never strayed far from it anyway, with your strength and attitude.

Luv,

Wolfen

peggylulu's picture
peggylulu
Posts: 366
Joined: Dec 2012

Wow great news . Doesn't get better than that !!! I know how relieved you must feel . Makes sence about your voice too , just needs more time after all it hasn't really been that long . Peg is gone too, is so good that you can eat enough already . Now get on with your new normal life and have some fun !!!

Ron Silver
Posts: 64
Joined: Apr 2013

Wow.  No more scans planned!  My 1st post tx pet is coming up in 3 weeks.  Can I borrow your results?

Skiffin16's picture
Skiffin16
Posts: 8021
Joined: Sep 2009

Damn, I thought I was seeing a Mr. Clean commercial....

Oh wait, I am seeing...Mr. Clean....

Awesome,

JG

fishmanpa's picture
fishmanpa
Posts: 1067
Joined: Jan 2013

John,

That was Halloween, 2005. Easy costume for me ~lol~ Maybe now I can get back to the gym and put some muscle back on!

"T"

phrannie51's picture
phrannie51
Posts: 3409
Joined: Mar 2012

Mr. Clean, Mr. Clean, Mr. Clean!! 

Guess I'll follow your lead......I tend to get jealous when everybody ELSE is getting PET scans, and my Onc won't give me one....maybe this is a great sign, huh?  I've gotten one PET 3 months after treatment (Nov. '12').....a CT in March.....and have another CT coming the end of this month.  They don't even do my chest....

They do things differently everywhere, tho, I guess.....I get scoped every 2 months and that will go on for the next year.  My ENT did tell me, tho.....that HE would see something before a scan would....so that makes me happy that I can see him every other month...I get a nice wave of relief whenever I go see him....Laughing....doesn't stave off the scanxiety, tho....I could see him on a Monday, get a scan on Weds, and still be chewing my nails.

By tomorrow at this time, you're going to be walking on cloud nine.....something about the first NED......well.....ALL NEDS......LOL....drop to your knees kind of relief.

p

jim and i's picture
jim and i
Posts: 1435
Joined: May 2011

Doing the happy dance and praising God for your great results. Love the Picture! You do look like Mr Clean:)  Debbie

Sunshine60
Posts: 68
Joined: Apr 2013

We were also told at our last appt that unless something warrants it, there will be no Pet scan or CT- only scopes every 3 months over the next year And 6 months after that through the next 5 yrs. Our oncologist said it is for several reasons: the tests add more radiation on top of what has already been done; the tests are expensive; the tests can often show false positives especially after radiation treatments.   I suspect it has a lot to do more with insurance companies.....and this is a Cancer Center. Never the less, my husband was told he is in remission at this point and both of us have slept through the night over the past week- with no help from meds!   :).  

CivilMatt's picture
CivilMatt
Posts: 2637
Joined: May 2012

Hi “T”,

Good report, don’t fret about future scans, they will watch you closely and if warranted, you will get a scan.

Enjoy the NED and the PEG free lifestyle.

Matt

janetluvsron's picture
janetluvsron
Posts: 108
Joined: May 2013

great news to hear!!!!!!!!!!!!!!!!!

 

congrats T, bet you sleep great tonight.

 

TracyLynn72's picture
TracyLynn72
Posts: 603
Joined: May 2013

That is such GREAT news!!

 

How was losing your Peggy?  Was it a balloon?  Isn't it a great feeling for it to be gone?

 

I'm so happy to hear all your good news.  Love the Mr. Clean pic, that's awesome!

fishmanpa's picture
fishmanpa
Posts: 1067
Joined: Jan 2013

Well almost ~lol~ 

No pain at all. It was the balloon. It slipped out with a little gurgle and they put a bandage over it. However, I was told not to eat anything the rest of the day because it could come out the hole. I thought of you and your post Peggy meal and the thought of my meal leaking out into my lap wasn't appealing! I could have liquids though. 

I woke up this morning and pulled off the bandage. All is good :)

"T"

TracyLynn72's picture
TracyLynn72
Posts: 603
Joined: May 2013

They didn't tell me not to eat, so this southern girl had a Bojangles biscuit less than an hour after evicting Peggy! LOL  Glad it didn't come spilling out :)  

 

So glad it was the balloon and you had an easy time of it! 

fishmanpa's picture
fishmanpa
Posts: 1067
Joined: Jan 2013

When my Rad Onc came in, he had his smart phone out and wanted to show me some good news. On the screen was a text from my SLP that said the PEG could come out! The best part about getting the PEG out was that Mysha, one of my Rad Oncology Nurses had to take it out. She's a sweetheart and one tough cookie that gave me a hard time about eating during my treatment. She's the one that told me I either got the PEG before I went home or be admitted and stay another two weeks. So it was poetic justice that she had to take it out. She asked me if I had eaten. Fortunately, all I had was water and an Ensure as I couldn't eat before the PET scan. My other Rad Nurse was busting on her, reminding her of the guy who had scrambled eggs before his was pulled. She told me that whatever was in my stomach might come shooting out when she pulled it. The look on her face was priceless! Fortunately, like I said, it was a little gurgle and that was it. Just a tiny spot on the guaze when I took the bandage off this morning. 

"T"

alligatorpointer's picture
alligatorpointer
Posts: 129
Joined: Jul 2012

Love the expression on your face Laughing !   You did a mighty fine job of sending that rascal Jack runnin' down the road... may he never come back.    

luv4lacrosse's picture
luv4lacrosse
Posts: 1345
Joined: Jul 2010

Dude, so jealous of your world class forearms. You look awesome brother!!!

i want to party with you!!

keep kickin the beasts ass!!

Best

Mike

fishmanpa's picture
fishmanpa
Posts: 1067
Joined: Jan 2013

Mike,

They're more like 3rd class forearms now! ~lol~ That pic was taken in '05. I had a 32" waist and weighed in at 225lbs @ 5'10". Now? Same waist size and weigh in at 167! I lost 65lbs due to Jack, most of it muscle. I got the all clear to work out so I'll be checking out the gyms in the area. Time to put some weight back on! 

"T"

 

Skiffin16's picture
Skiffin16
Posts: 8021
Joined: Sep 2009

Down to 167 huh.....

You just lost the little sick punk azz named Jack that weighed, ummmm.wait, let me grab the calculator..., I need to do some cyphering.. 225-167=58#...

The small sick person in your body named Jack that weighed in at 58#.

Cool

JG

donfoo's picture
donfoo
Posts: 987
Joined: Dec 2012

So glad to hear the great news and trilled for you. Must be a huge weight lifted off, just the waiting and unknowing. Sounds like a lot was accomplished in one day up there. Say bye bye to PEGgy for me. LOL don

Tim6003's picture
Tim6003
Posts: 1489
Joined: Nov 2011

Mr. Clean!!!  Great and wonderful news T ...very happy for you.

 

Tim

Duggie88's picture
Duggie88
Posts: 462
Joined: Feb 2010

It's mister Clean. I knew there was something to that last week when I called you that. I also had a hunch you would be clean and green. Wait if you were green that would make you the Jolly Green Giant.

Congrats my friend. I will never forget getting the results of my first scan. You will come down from cloud nine in a few days but until then enjoy your stay and the NED high. A much better high than the oxy one.

Enjoy the day and heal on

      Jeff

Laralyn's picture
Laralyn
Posts: 405
Joined: Apr 2012

That's great news! :-)

debbiejeanne's picture
debbiejeanne
Posts: 1908
Joined: Jan 2010

wonderful news all around!!  now u can hit the gym.  don't overdo to quick.  u r still recovering. 

about the scans, my doc said no more scans for me to.  others have said the same thing so i guess thats the norm. 

enjoy the goods news and ur new freedom (peggy).  don't forget to do a happy dance.  Cool

dj  

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

Congratulations, I'm so very happy for you!! It just makes my day when I read stories like this!! Enjoy now and relax!! They will monitor you in the future, so don't worry!

katenorwood
Posts: 1729
Joined: May 2012

T.....fabulous report !  Praying NED forever and a day for you !  Hugs sent !  Katie

Ruben and Jude's picture
Ruben and Jude
Posts: 152
Joined: Apr 2013

That's great news, congratulations. No evidence of disease AND No PEG..... awesome!

(The V.A. also told us no more PET Scans... "too much exposure".  It's a conspiracy I tell you...jk.)

Take care, prayers for continued NED forever.

Greg53's picture
Greg53
Posts: 819
Joined: Apr 2010

T,

 

Way to Go, Man!!  Awesome news.

 

Greg

cureitall66's picture
cureitall66
Posts: 795
Joined: Aug 2012

So Jack is gone.....this should make you Happy, Happy, Happy! Laughing

Glad to hear your news!

fishmanpa's picture
fishmanpa
Posts: 1067
Joined: Jan 2013

Not only did I just get the "Official" NED call but my MO called and since I'm doing so well, canceled my appointment for Friday. She ordered a full blood workup which I can get locally and I'll see her in November when I see my RO and Speech/Language Pathologist. 

"T"

catfish_58's picture
catfish_58
Posts: 71
Joined: Feb 2013

I'll give that news a 2 thumbs up,Glad you came through it with a NED,Grrrreat news.The doctors told me the same as you on the scans and as you say take that any day, and i too have to get the scope everythree months for 2 years too.

patricke's picture
patricke
Posts: 332
Joined: Aug 2006

Mucho Congratulations T, this report is ABSOLUTELY TREMDNDOUS, and here's hoping that they continue to come in the same in the years to come!!!

PATRICK

MICH4EL's picture
MICH4EL
Posts: 73
Joined: Mar 2013

i am still one month from my scan.  

M

Hondo's picture
Hondo
Posts: 5440
Joined: Apr 2009

Should I call you Mr. clean; So glad to hear the good news. Wow I did not realized you two looked so much alike… lol

 

Hondo

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