1. Told no evidence of cancer in spine. No lesion seen, probably old fracture at L1 with arthritis. Did light up on pet, but MRI confirmed no lesion there. It can turn into cancer, but right now NED there.
2. Echo and EKG is fine to start Herceptin-woo hoo!!
3. Starting Folfox, feels it has been proven to work, more evidence with colon cancer, but feel it will work. DCF was suggested by our other onc, but mayo felt to harsh on heart especially with herceptin. They did warn us specifically about nueropathy so a little nervous about that. All in all I read the side effects are alot less than with DCF. He said he would rather try a lighter coctail 1st , feels very confident it will do the job. He said if it doesnt we still have other options. He said why start out with a more intense when this one could work. I agree!!
4. Schedule is 2 Weeks on and 2 Weeks off, Tues-Thur. Pump on 3 days, dad was happy about that.
All in all I just feel so much better, so does dad. He said the chemo will be at least 6 months if no complications. He said he didnt understand why he tested her2+ this time and not last. My opinion the 1st time was done at my request and the specimen sat too long in formalin before done. PLEASE request that your loved one gets tested when tumor is removed, so it doesnt sit on the shelf for Weeks, formalin will affect the results. I was so impressed with the doctor and staff. The warmth we feel from them is so comforting. They had ordered so many tests following the consult and they did them all,same day, called same day at 5, couldnt believe it. He said he cant predict time, never does,he said he would have to have 100 patients exactly the same to do so, never happens. He told dad to forget the 4-8 for sure. He also went into mind and spirit importance to survive, so he set dad up for the pallative care at mayo to help with that. He really believes in this, so do I. I could go on and on about the great experience, but there was nothing more rewardind than to see Dad struggle to stand up to shake is hand and say "Thank you for giving me my life back today, I died on the inside a few Weeks back when I was told time is coming up." The doctor replied, "Jeff you will have plenty to make memories, your going to be that patient I tell future fighters about. I hug so please sit back down so you dont fall", and he leaned over and hugged him and winked at me. This is our guy for sure!!! Dad starts treatment this Tuesday, praying for an easier journey, the least amoint of side affects, and strength to pull him through. Thanks to everyone for your support and prayers.
*Lynn, I did ask about the NP thing and he said dad will see his fellow whos an MD every week during treatment, and him twice a month from here on out. He assured me that if there is any side affect or complication he will be seeing dad. The NP is there for same day emergencies and triage of phone calls. He said that he is there everday if it is something the NP would need to consult him. He said it is that way because he wouldnt be able to see all patients and new ones in a timely manner.Fingers crossed...nothing like that will happen. Regarding port problems the NP triages, but radiology removes and inserts. ???why different at your mayo.