Aug 03, 2013 - 5:06 pm
I was a bit hasty when I posted the scans were fine. I had not spoken to the oncologist, my husband spoke with her and gave me the news when I got home that my scans were fine but I needed to follow up with my Pulmonologist about the spot on the bottom of my right lung. I didn't mention that part to you because I have been in his care for years and have an appointment on Monday already made.
MSK has a new patient portal where you can look at your scan reports so instead of calling my Oncologist myself, taking more of her time, I waited for the report to be posted. I found the spot had more than doubled in size (1.2 centimeters to 3.8) and there were other things that they say in the report were "unchanged" that are there in this report, but these things were in none of the other reports. My first scan in June of 2011 said "Paramediastinal consolidation in the right lower lobe. Differential includes atelectasis, pneumonia and tumor." But said nothing about Thoracic Nodes like this one or anything about the left lung which says: "1 cm right hiliar node is unchanged." and "Unchanged 0.5 cm let upper lobe peri fissural ground glass nodule." How can it be unchanged when it was never cited as even being there before?
I will see the doctor tomorrow but naturally with my "say whah?. . . . " nature have been researching once again the correlation between deafness and metastisis and guess what. I found something called Paraneoplastic syndrome which they say is consistent with an autoimmune etiology that is one of the causes of the sudden hearing loss with extreme vertigo like I suffered. They gave as an example a woman with an oat cell carcinoma of the lung who had SSNHL like me and said lung cancer is often the cause.
My Pulmonologist had no idea I was getting a CT scan. He also reviewed the other scans so I am looking forward to seeing what he saw on the disc they provided him.
We have to advocate for ourselves, my dear friends. I resent how my health seems to be devouring my mind but I want my health back! So practically all I am doing is eating, sleeping and researching again. There is still no hope of getting my hearing back from any research available other than a few "healers" on the internet.
I also saw a new Psychologist at MSK who referred me to a Psychiatrist. She has diagnosed me with depression. I would say this is very true.
Sorry for my pity pot stuff, but it was another up and down. For a few days I believed everything was fine.