Jul 28, 2013 - 1:36 am
Hello to my online family. Man do I miss chatting you all up! I'm hoping to get back on and post more often pretty soon. Mom is officially now in an assisted living facility. I won't pretend she is happy and all is well, in fact she is quite mean spirited and downright angry at me right now, but I know it has to do with the dementia / Alzheimer's. Heck, I'd be a be frustraed and upset too if I had been plucked out of my home of 13 years (2 years a widow) and plunked down 2,000 miles away!
I joking (well, kind of) told my oldest son and wife today "if I ever outlive my mind, take me out in the woods and leave me" ...(for all of you who know me, you will understand the humor, for those that do not, I'm probably not making a good impression at the moment.
So tonight I truly felt a strong urge just to go in my room and open a hard bible (not my online stuff I usually do) and boy did I get some good encouragement. Then I thought, hey, I'lll pop in on my CSN family and drop a post, and what do I see, you guys posted "Tim" and some thoughts and boy that sure made my night. So thanks all for thinking of me and for those prayers. It's been a long, long 8 weeks. (I flew to Daytona May 25, came back June 5 and have been working ooohhh so hard to get mom the care she needs all the way up until this past Thursday when we got her placed).
For those that I did not share with, my scope and my lung / head & neck scan came back NED and my taste just the last few days (which came and then went again 3.5 months ago) is starting to come back!!! So excited about that, man do I miss TASTE!! (shhhh, we don't want to scare off the buds again).
For all you new folks, I has stage III Base of Tongue, one lympn node. Rads and Erbitux (no surgery) and I am now NED at 20 months out. I have lost a total of 100lbs, 70lbs ish in treatment and I had my feeding tube placed before treatments began in November 2011 and had it removed June 2012.
Well, I reallycould go on all night, truly miss everyone of you ...and if you think I have forgotten any of you, I have not. I said a prayer for every single person on the H&N CSN site tonight and asked the good Lord for miracles and for peace.
I have been getting my wood cutting / fishing in (nothing to hunt at the moment) but so much of my time truly hsa been with mom. Just when I think I can say "this is the hardest thing I have ever done" ..something comes along to bump up a notch ....lol.
Take care all.....I truly hope to be posting more soon.
Love to all ...