Jul 22, 2013 - 5:15 pm
I remember 5 months ago I wrote a post saying “One ABVD down and 11 to go.”, now 11 down and 1 to go. I really didn’t have many posts but surely I was checking and following posts 1-3 times a week.
As I am excited for getting close to be done with chemo, and looking for it to get married sometime within the next 6 months from my collage girlfriend 20 years ago, I had reunited with last year (we live in different states).
Now I am kind feel why should she commit to someone like me. I am not trying to put myself down, I am just worry about my future wife have to live with me nervously on every 4 months checkup bases that cancer may return.
Please understand my point of view I am not trying to be pessimistic. I am just trying to live the reality. In matter of fact I was so optimistic on my last visit with the oncologist when he told me that I may have 80% of progression free survival from the initial treatment. UNTIL I read this article about NLPHL today at the American Society of Hematology site. (https://ash.confex.com/ash/2012/webprogram/Paper50242.html)
From the article Conclusion:
Conclusion: With long-term follow-up, almost half of the patients with NLPHL develop a lymphoma relapse and large proportion experience transformation to aggressive lymphoma. Splenic involvement is a strong risk factor for eventual development of aggressive lymphoma providing a rationale for CHOP +/- rituximab based chemotherapy. Although the OS of NLPHL is comparable to cHL, there is an inherent increased risk of transformation and late relapses, highlighting a distinct disease behavior and the need for repeat biopsy at relapse as well as long-term surveillance.
Please note I am NOT trying to put anyone down. I am just trying to discuss the metter with you all, and see what you think since you all been here for me from day one.