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New Primary Tumor in colon

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Oh the joys of colorectal cancer, they just keep a coming.

first off, had my liver surgery 8 weeks ago, and before I went back to Oncologist I emailed him and asked for a colonoscopy which I had last Friday.  When I awakened the Dr. said that she could only go up a very little ways as a tumor blocked her from going further up.  She said she kept trying but couldnt get around it. She said she took several biopsies.

Saw Oncologist today and it is a new primary colon tumor.  This tumor did not show up on the PET/CT scan that was taken a month before liver surgery, this tumor also did NOT show up on a CT scan taken the week before liver surgery.  It only showed up on colonoscopy, go figure. 

So having another PT/CT scan next Wednesday, back to Oncologist then onto surgery again. Shame I didn't ask for colonoscopy BEFORE the liver surgery.

Winter Marie

wolfen's picture
wolfen
Posts: 1206
Joined: Apr 2009

I almost cried when I saw this. You just fight and fight and yet it won't leave you alone. But you are so strong and have accomplished so much in the time I have known you. I know your spirit and know you can do this again. Jenny & I will put our "$hit kickin' boots back on again for you.

I'm here if you need me.

Luv,

Wolfen

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

I'll be getting rid of this tumor too.  Happy it was found and happier it can be removed!  Keep those shitkickers handy, got to kick this tumor's arse on down and out!

Winter Marie

Dyanclark's picture
Dyanclark
Posts: 272
Joined: Apr 2012

So last August when George had surgery for scar tissue they found a dead  tumor in small intestine.   He was on chemo for rising CEA.   He has pet scans & CT scans & this tumor didn't show up .  I just don't get all this stuff.  Since they didn't see it on scans they stitched him right where dead tumor was and so stitches didn't hold, next day they had to take him back to surgery as he was bleeding, was a disaster.  He came close to not making it.  

We have been all over Northwest last three weeks just taking a break. 

 

Hang in there George & Dyan

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

You were able to have a nice break from all this! Man, that sucks on the dead tumor, yep those don't show up on the scans though.  But my surgeons all say before surgery they'll look around to see if they see anything, you think his would have done so too.  

Hope you had a wonderful time!

Winter Marie

wawaju04976's picture
wawaju04976
Posts: 316
Joined: Dec 2012

Sorry to hear this, but you are one tough cookie. If anyone in here can attack this tumor, it's you, Winter. Take that winning spirit and aim it at that bleeping tumor!

Judy

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Dang tumors just need to quit growing at some point, don't they?  Well maybe someday, plan on getting rid of this one in the next few weeks!

Winter Marie

kennyt's picture
kennyt
Posts: 110
Joined: Jun 2013

to hear this news

 

kenny

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Winter Marie...I am so sorry to read this.  you must be so frustrated!  Are they going to be able to do chemo before surgery to shrink it a bit?

 

alex

geotina's picture
geotina
Posts: 2070
Joined: Oct 2009

#$@&%)(&%!!!!!

Love and Hugs - Tina

LivinginNH's picture
LivinginNH
Posts: 1337
Joined: Apr 2010

Oh damn! You just can't get a break!!!  :(

(()))

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

That's what I said, #&!@#! and damn.  Not to worry, this one doesn't get to sit around and go the chemo route, onc said we are just going to get  sucker cut out! ;)

Winter Marie

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

so sorry yo hear about this news,but i know you are a fighter so fight on....by the way my surgen told me that my cancer would not come back in the area where it was originally because when i asked him about that he replied that area was dead and would not return there.its funny how our docs tell us all different things about the same kind of cancer.anyway you just keep on fighting i know you can do it...Godbless...johnnybegood

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

My surgeon Dr. Raju said to me after surgery, you have fast growing polyps you need a colonoscopy every year.  After being treated like sh!t by receptionist at colonoscopy Dr.'s last year I didn't go back there.  HA! It's my fault this time.

But sure enough it's new primary tumor.  They can develop new ones in colon where polyps grow!

Winter Marie

hippiechicks's picture
hippiechicks
Posts: 374
Joined: Sep 2012

You said it right ... life is too good to give in ... so you have the fight still in you.  Keep on keeping on.  You can do this! Surgery is a blessing!! 

Just cut the ^&*(%# out!

You go girl!

Wishing you all the best!

Wink

 

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Plan on it!  :)

Winter Marie

Chelsea71
Posts: 1170
Joined: Sep 2012

Sorry you're having to deal with this new development. Maybe it worked out for the best, though. In my area it seems surgeons are more reluctant to operate when there is disease in more than one area. Keep us posted.

Chelsea

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Stanford is the best!  3 years ago when no one else would touch me and refused to operate they removed in one surgery: colon tumor, several liver tumors and ureter tumor.  I had a different surgeon for each, and I had lung mets as well, 10 hour surgery. Still here almost 4 years later (next February) because of my onc pushing to get the surgery and the surgeons willing to do it!

just not looking forward to another surgery in three month span, but glad to get it!

Winter Marie

Chelsea71
Posts: 1170
Joined: Sep 2012

Winter,

You and Phil strike me as people who are managing your disease really well. I think part of it is that you are being treated at great facilities by outstanding doctors. You've done so well these past four years, especially considering the grim prognosis you were originally given. I've often thought that Phil may be one of the "lucky" ones. Not having to deal with the emotional roller coaster of being NED. I've been thinking lately of where things went wrong with Steve. In retrospect, what could/should we have done differently. I do think there have been little mistakes along the way but I am not sure if things would have played out much differently. Cancer is so complicated. I guess it's a waste of time for me to try and figure out why some people do better than others. I am just very happy that you have done so well. Sorry you have to deal with another surgery.

Chels

Annabelle41415's picture
Annabelle41415
Posts: 4399
Joined: Feb 2009

Was just stunned to see your subject line and I'm so sorry that yet again you are dealing with more cancer.  As the others have said, you are a true fighter and believe you will come through this with flying colors.  Wishing you the best in your upcoming treatment.

Kim

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

A week ago I was crying after colonoscopy, wanted to scream at unfairness of it all, but friends on Facebook colon talk site let me do the screaming and cursing and got it out of my system (I didnt want to post here so soon after Craig's news) so now I am in let's kick it's arse mode, and hey, what's one more tumor.  One at a time right?

Winter Marie

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Hope u continue fighting as you know!
Sending my best vibes my old friend!.
Hugs blessings and prayers dear Winter!

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 473
Joined: May 2012

Sorry to hear the news but glad you are having surgery so soon. You said Dr couldn't go past obstruction with scope, I was just wondering were you having any bowel movement problems. I know when I finally went to Dr that I could barely go at all. Is it in a different part of colon than your original tumor? How could it have been missed on CT and Pet? Even though it is a fast growing cancer - it couldn't have grown to totally obstruct you in a few weeks. Do they or you plan to do any chemo follow up? Good luck with surgery, I'm sure you are just wanting to get it out.
Sandy :)

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

First question off, they saw this tumor almost 6 months ago, and had put possible new primary, but then the  last PT/CT scan it had disappeared, as they put it "completely resolved" and the next CT scan done elsewhere a week later before liver surgery also showed NO tumor.  Yet it hadn't resolved itself, it hadn't gone away, unless it had really shrunk and grown back in 8 weeks, who knows but the scope is what detected it was still there.  She said she could not get around it.  That it was just by the corner to the sigmoid and she couldnt get the scope around it and said she really tried. Bowel movements have been painful, but normal for me, what concerned me was a really small bit of congealing blood showing up on occasion and a pain that at times feels like organs ripping apart on my right side (again wrong side for where tumor is) if they get it all will probably not do chemo follow up.  And originally when first diagnosed with colon cancer they said it was in sigmoid, but scope just before surgery showed it in cecum (or however they spell it) on right side not left side as the scans had shown.  So this new one in on opposite side of original tumor.

Winter Marie

Sundanceh's picture
Sundanceh
Posts: 4339
Joined: Jun 2009

With you as always...

Not what I wanted for you:(

Know you will get it done the way you always do:)

hugs:)

 

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Well I've got faith thanks to you.  I see you still here, still going through it all and wouldn't do for me to give up either but keep on trudging along.

Luv

Winter Marie

dorookie's picture
dorookie
Posts: 1692
Joined: Jul 2007

Hi Ms. Marie 

 

im so sorry to hear this news, but I know you are going to get it out and keep on going!!! Keeping you in my prayers...

 

Hugs

Beth

janderson1964's picture
janderson1964
Posts: 1824
Joined: Oct 2011

Damn I am sorry. Yout don deserve this. Your tuff though. Go after it and get it cut out.

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

You're always sending your best, I do so appreciate it!

Winter Marie

Lovekitties's picture
Lovekitties
Posts: 2992
Joined: Jan 2010

So very sorry to hear this news.

I hope that you can get your surgery scheduled soonest. 

Sending best wishes, hugs, prayers and all good things your way.

Marie who loves kitties

 

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Thank you for all those good things you're sending my way, thank you for being you.

Winter Marie

MaryCarol5's picture
MaryCarol5
Posts: 95
Joined: May 2013

Hugs and well wishes!

MC

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

The only thing I know is it won't be before August 11th, I have a plane ticket to Ohio that week and won't be back until the 11th.  Daughter and 2 grandchildren there I've been looking forward to seeing after the liver resection. :)

Winter Marie

lilacbrroller's picture
lilacbrroller
Posts: 331
Joined: Jun 2012

Sorry to hear that. Well, seems you've got it under control.

good luck

Karin

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Love your bird avatar!

Winter Marie

ron50's picture
ron50
Posts: 1318
Joined: Nov 2001

Hugs Mate , I am so sorry...Ron.

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Thank you for the hugs Ron.  Hope this finds you nice and dry and mold free. I worry about you.

Winter Marie

MaryCarol5's picture
MaryCarol5
Posts: 95
Joined: May 2013

Soak it all in with those babies- great medicine before your surgery.Safe travels to you and hope you have a great trip!

 

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Thanks Mary Carol, I plan on a safe and happy trip.  Added bonus is one of the girls that used to hang around my house is having her bridal shower while I'm there :). First marriage for her.

Winter Marie

danker
Posts: 769
Joined: Apr 2012

I cannot believe you are effected again.  Hope surgery can get rid of it for you.  Best of luck!

Cathleen Mary
Posts: 641
Joined: May 2011

Oh, Winter Marie, so sorry you have more to go through. Love your attitude. Prayer and wishes you will soon have it behind you.  Enjoy your visit with grandchildren.....as usual, your prioriities are in the right place.

Hugs,

Cathleen Mary

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

I definitely need my grandchildren fix from those grandsons in Ohio!

Winter Marie

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Hope this is the last one for awhile :)

Winter Marie

Goldie1's picture
Goldie1
Posts: 257
Joined: Sep 2011

Sorry about the language...but I know you are on top of this and I wish you all the best!

Ellen

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Was a bit stronger LOL!  Thanks Ellen.

Winter Marie

angelsbaby's picture
angelsbaby
Posts: 1162
Joined: May 2008

sorry marie  kick the crap out of that cancer i know u can do it again

good luck

 

michelle

annalexandria's picture
annalexandria
Posts: 2320
Joined: Oct 2011

Can't believe even the PET managed to miss this thing.  I wish CSN would let us really swear, because this deserves some serious cussing.  I'm so mad for you, you shouldn't have to go through this.  But I know you will...and get back on the road to remission.  Good thing we have about 300 feet of colon.  We can just keep whacking bits out as needed.  At least that's been my approach so far.

Sending lots o' love your way~AA

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