Jul 16, 2013 - 10:44 pm
I appreciated feedback from my initial post in early June. I was diagnosed with aggressive prostate cancer in May (G9, T2b... so far) had MRI and cat scans (all negative results) as well as MRI to check for metasteses from previous melanoma. Because of my high gleason scores, my urologist initially recommended radical prosectomy, but sent me to a radiation oncologist, who recommended 81 Gy in 45 fractions with IMRT & IGRT. At a follow-up appointment, urologist changed recommendation to radiation and hormone therapy.
Inbetween appointments and tests I continued learning more about this disease (lots of posts here!) trying to make a decision about which treatment to pursue. Just as I was ready to choose one option I'd read stories about recurrence or side effects from treatment that moved me in the opposite direction. However, I was leaning toward radiation.
I decided to return to MD Anderson for a consultation through their prostate therapy center (MD Anderson 'managed' my cancer care in '05, although I received proton treatment at Loma Linda.) My appointment was Monday, I met with both the urologist and radiation oncologist. Both agreed I was not a good candidate for surgery. Until my meeting with Dr. Pugh, the radiation oncologist, I had not considered proton treatment (based on some negative comments I'd heard about proton treatment for prostate cancer). However, I came away with a different perspective.
I'm now considering moving ahead. Before I do that, I would highly value feedback from others who have either received proton treatment there (particularly) or elsewhere - or know others who have done so. I was highly impressed with the treatment at LLMC - and with the staff. Yet, I know the costs involved in making the decision to go to MD Anderson. So thanks for any feedback.