Jul 12, 2013 - 5:28 pm
I'm approaching my 1 year anniversary for my surgery [ 07/17/12 ] and have had two (2) follow up CT Scand with & w/o contrast [ November was my first, and my 2nd was March - so it's been slightly over the 3/ year mark, but close. My routine has included Xrays, bloodwork, ultrasounds and to-date have been scheduled for every 4 months or so.
My tumor was 5.0cm Stage 1/ Grade 1.
My current follow up is with a generalist ONC DR that was trained at a leading FL cancer center and has a few patients with Kidney cancer, as well as, a Urologist. I know I probably should be seen by a RCC Specialist but, believe it or not, if they didn't do the surgery then getting in to see them is very tough. I'm talking Urological ONC's. What they say is - your current 'genralist' is ok and if a problem arises we'll see you.
I spoke to a few DR's about this and have received different answers on what follow up I need and how often. Anywhere from about 3x / year [ current schedule ] - to annual x rays then CT every 2 years which I wasn't comfortable with and why I didn't let my surgeon [ general urologist ] continue with my follow up treatment and why I sought out the ONC Generalist I'm currently seeing.
Is 2x/ year enough for what I'm having done and my case specifics? Then once a year after the 2 year mark. I'm sure there is a protocol for my specific case type.