Jul 07, 2013 - 10:45 pm
Hi, I am 73 and was diagnoised with non-hodgkins lymphoma in my brain in Jan of 2010. I saw a post about primary cns lynphoma and was wondering if the posts would also be aplicable to me? I have been on high dose MTX anf Rituxan since I was diagnosed. At first it was every 6 weeks and my tumors shrunk. After about 9 months the times between the high dose MTX was gradually increased. One tumor was gone after 4 months and the other bigger one has left some evidence in the brain but according to MRI's has not had any activity since Sept of 2010. I am back to driving and was back to work as a mental health therapist at a school. I decided to retire the end of this year. I now get Rituxan every month and every 4 months a MRI and High dose MTX. I have never met anyone who has PCNS DLBC NHL and was told it was rather rare. I would like to communicate with those who have what I have. I am doing well but really have no idea of what to expect. I guess the fact that i am so old has some implications but somehow I'm still going and seem to get stronger every year. Thank you. Mary N.