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Research

CypressCynthia
CypressCynthia CSN Member Posts: 4,014 Member
in Breast Cancer #1

For those of you who aren't aware, but are interested in helping in research, www.armyofwomen.org is a great place to go.  I believe you have to create an account, then go to Sign Up Today, then Current Projects.

For years, I wanted to participate somewhere, somehow, but could never figure out the NIH sites (you can still go there to look but I find it very difficult to figure out what I can enroll in).

Finally, Dr. Susan Love and Avon brought us a web site where you can quickly scan over studies that you might be eligible to participate in and everything is written in language you can understand.

I have now particpated in 2 studies: one for young women diagnosed with breast cancer (this one called for a blood sample and it didn't matter that I am 60 now) and a new one, Hormones, the KRAS-variant, and Breast Cancer Risk (Yale).  The latter required some path reports and an easy to do at home saliva specimen.

It feels so wonderful to be a part of a possible solution!  If I could help one single breast cancer patient...well I don't think I have to explain here! 

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Comments

  • coco2008
    coco2008 CSN Member Posts: 418
    #2
    Thanks for the info

     

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  • LoveBabyJesus
    LoveBabyJesus CSN Member Posts: 1,679 Member
    #3
    Thank you for the info. I

    Thank you for the info. I like to participate in studies too. I am currently doing one of genome testing at Sloan.

    I will read more about what you're suggesting.

     

    XOXO

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  • SIROD
    SIROD CSN Member Posts: 2,194 Member
    #4
    Saliva?

    You have certainly done more than I have for breast cancer.  

    Thank you for bringing it to our attention.  I probably should go read about it.

    Doris

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  • CypressCynthia
    CypressCynthia CSN Member Posts: 4,014 Member
    #5
    SIROD said:

    Saliva?

    You have certainly done more than I have for breast cancer.  

    Thank you for bringing it to our attention.  I probably should go read about it.

    Doris

    It was very simple to do.  I

    It was very simple to do.  I never get the results of any of this, but I just want to help so I am ok with it.  Looking at my beautiful daughter and nieces is reason enough for me to spit in a little tube...Lol.

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  • VickiSam
    VickiSam CSN Member Posts: 9,079 Member
    #6
    CypressCynthia said:

    It was very simple to do.  I

    It was very simple to do.  I never get the results of any of this, but I just want to help so I am ok with it.  Looking at my beautiful daughter and nieces is reason enough for me to spit in a little tube...Lol.

    I have been a member of this site since .....

    2009 ..  I have gather great information, and insight from them.

     

    Vicki Sam

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  • TraciInLA
    TraciInLA CSN Member Posts: 1,994 Member
    #7
    VickiSam said:

    I have been a member of this site since .....

    2009 ..  I have gather great information, and insight from them.

     

    Vicki Sam

    Proud member of the Army of Women!

    I've been a proud member of the Army of Women since 2009.  I've participated in about half a dozen studies since then:  several quick, easy online surveys, and one study of social support for lesbian breast cancer survivors that required several phone surveys.  

    I also did the blood sample one for young women diagnosed with breast cancer, and I've signed up for and am waiting for my kit to arrive in the mail so I can spit in a test tube for the saliva one. Ah, yes -- isn't research sexy? Wink

    For me personally, I feel like it's my responsibility to participate where I can in finding the cause of this terrible disease that takes so many women and men from us.  IF there is a reason I got breast cancer, maybe that's the reason?

    Just my own personal feelings,

    Traci

     

     

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  • Chickadee1955
    Chickadee1955 CSN Member Posts: 356 Member
    #8
    TraciInLA said:

    Proud member of the Army of Women!

    I've been a proud member of the Army of Women since 2009.  I've participated in about half a dozen studies since then:  several quick, easy online surveys, and one study of social support for lesbian breast cancer survivors that required several phone surveys.  

    I also did the blood sample one for young women diagnosed with breast cancer, and I've signed up for and am waiting for my kit to arrive in the mail so I can spit in a test tube for the saliva one. Ah, yes -- isn't research sexy? Wink

    For me personally, I feel like it's my responsibility to participate where I can in finding the cause of this terrible disease that takes so many women and men from us.  IF there is a reason I got breast cancer, maybe that's the reason?

    Just my own personal feelings,

    Traci

     

     

    I have been part of The

    I have been part of The Sister Study since my sister was diagnosed with breast cancer in 2007.    The study lasts 10 years and has participants all over the world.  I had to give blood, urine and toenail samples along with dust from my house, blood pressure, weight, etc.  Every year or so I have to complete a

    very comprehensive questionnaire on my health, environment, experiences.  I joined the study because I have 2 daughters and

    3 nieces and wanted to do what I could to help prevent them having this disease. Who knew I would get cancer in 2010?  The Study

    puts participants who contract the disease into a different group, but continues to follow them for the 10 years.

     

    Chickadee

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