Jun 25, 2013 - 9:25 pm
Hello to all my beautiful ladies (and gentlemen)!
I have not been here in while because I have had travels, family emergencies and a lot of work (working late a lot). I wanted to give you an update about me.
I went to the Dominican Republic to visit my family and stayed there for two weeks. My great aunt was dx with bc and I wanted to give her support. She removed her breast and looks like she got clear margins with clear nodes (thank God). Now they are suggesting she takes herceptin and some other chemo drug to lower the chances of it coming back. She is 74 so we might not go for it. Please keep her in your prayers - her name is Ledy.
I also had a good time seeing my family since most of them did not see me after my dx.
I'm scheduled to have a breast MRI in August and a mammo in Oct. (FUN). My Onco follow up visit was good and blood work was good. Thank God.
I'm part of a study at Sloan. They will do what's called genome testing where they will check thousands of my genes simultaneously. There are 4 bins to choose from. I can either know about no bins, some bins or all bins. Bin 1 will give me information about my risks for ALL cancers, as well as pharmaceutical drugs my body can tolerate and how much of it it can (dose levels). This bin will also expose information about diseases I can prevent or help lower my risks for. Bins 2 and 4 relate to diseases I can't do anything about, such as brain diseases. Bin 4 relates to diseases I carry and can pass on to my children, but I won't develop it myself.
They will contact me on Thursday to find out what I have decided. I think I am going for bins 1 and 4. What would you do?
I see some new people have joined the forum, sadly. I am sorry you are going through this but please know you've come to the right place for support.
I hope everyone else is doing well and living life day by day, to the fullest. I know we will always worry but I pray we all come to a point where we can have more happiness than sadness (and worries).
I will read posts now to see how everyone is doing.
I love you all. And you are always in my prayers.