Jun 24, 2013 - 10:49 am
I live in Louisiana-land of hot as hades summers--always in the 90's, lows in the high 70's or 80's and 70% humidity. Think sauna!
Usually, we head to the mountains in the summer. This summer, on chemo, I am not ready to go anywhere.
My oncologist warned me that on my regimen (perjeta, herceptin, taxotere) I should be extremely careful going outside. So, to go outdoors, I wear SPF 50 and I very big UV blocking sunhat. I am olive complected and I do wear sunscreen daily, but I have rarely ever burned.
OK, here's my problem, if I am out in the sun (with hat and sunscreen) my face gets very burned and swollen and, even worse, I feel nauseated. It is almost like a weird allergy to the sun. My extremities and chest are untouched. But my eyes and cheeks are swollen and red still this am after a short walk on Saturday. Yesterday I felt awful. By the afternoon, less nausea, so I went mall walking.
I went out just long enough for Cindy Lou to get a brief walk this am, but even that made me nervous. So torn because I love to walk.
Danny's best friend owns a ranch in Mississippi that is on a beached bayou with lovely large roofed docks with fans and water slides. We are scheduled to go there on the 4th with Katherine, Aaron and Bella. But, I have to tell you, I am scared to death. Maybe I can wear a burka.
No easy answers here, but I guess just needed to ventilate my frustrations to someone who would understand.