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NED!!

corleone's picture
corleone
Posts: 223
Joined: Jul 2012

Just a quick update: I had a nasopharyngoscopy performed today by the ENT surgeon and I am happy to report a NED! He said that the nasopharynx (which looks "pristine") and also the oral cavity mucosa, healed very well (and looks well hydrated - here I beg to differ, LOL). In his own words, out of the hundreds of patients he sees with this condition, I look exceptionally well.

I am 9.5 months post radiation and 6.5 months post last chemo. For the treatments I had for the nasopharyngeal carcinoma, please check my bio.

I was really anxious before the follow-up appointment, but who wouldn’t have been?! Otherwise I am doing great, with the usual side effects, really manageable. Dry mouth still there (saliva ~30-40% - my own estimation, but that’s highly subjective), taste a bit off but not by much, I can eat anything I want (with my best friend – bottle of water – around); level of energy very good (except sometimes in the afternoon when I feel like I need to take a nap – and I do, when I work from home, for about 20-30 minutes, and in the evenings); hearing loss (that’s permanent, but I am wearing hearing aids, helping me a little). Work is OK, I started 3 months ago (tough the first couple of weeks, until I got into the usual rhythm).

That’s about it; I wanted to share that with you.

sin9775's picture
sin9775
Posts: 199
Joined: May 2013

Congratulatons on you NED results.  I am so looking forward to hearing my brother report the same.  He's not quite half way through treatments, so there's a long way to go.  May God bless you with continued healing.

 

~Shawn~

osmotar's picture
osmotar
Posts: 1002
Joined: Jul 2011

Wonderful news

boardwalkgirl
Posts: 269
Joined: Jun 2012

Wonderful news!! I am hoping for the same thing on Tuesday! Glad things are going well for you!

 

Greg53's picture
Greg53
Posts: 848
Joined: Apr 2010

Congrats!!  Another NED - gotta love it!

 

Greg

phrannie51's picture
phrannie51
Posts: 4456
Joined: Mar 2012

NO EVIDENCE OF DISEASE!!  Nothing better than that.  Congrats on your latest meet up with Mr. Ned.

p

CivilMatt's picture
CivilMatt
Posts: 3742
Joined: May 2012

Corleone,

I nod to your NED!

Dry mouth and taste improving, eat anything, back to work and naps in the afternoon, you had one good bus driver, way to go.

Best always,

Matt

D Lewis's picture
D Lewis
Posts: 1573
Joined: Jan 2010

Always happy to see NED!

Deb

Tim6003's picture
Tim6003
Posts: 1506
Joined: Nov 2011

Very happy for you...

 

Best,

Tim

Skiffin16's picture
Skiffin16
Posts: 8290
Joined: Sep 2009

Thanks for sharin...., awesome news I never get tired of hearing...

JG

hwt's picture
hwt
Posts: 2330
Joined: Jun 2012

Celebrate!

katenorwood
Posts: 1914
Joined: May 2012

I am so happy for you !  Those three wonderfully put together letters of the alphabet N...E...D !  Continued success in everything !  Hugs sent !  Katie

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