Jun 18, 2013 - 8:14 pm
I am on the esophageal board as my husband Mike was diagnosed in April of this year with re-occuring Stage 4 cancer in his esophagus. A short over view of our story is Mike started to have food get stuck in his esophagus so on April 5, 2012, a day before his 57th birthday, he had an endoscopy which revealed he had a tumor at the base of his esophagus where it met his stomach. He endured chemo and radiaton and on August 21, 2012, he endured a 9.5 hour surgery to remove his entire esopahgus and pull up his stomach to make the new esophagus. After 8 long months of rehab, he was ready to go back to work one day a week. He had a routine visit with his cardiologist who took him off his heart meds that he was on after surgery for heart pulpatations and within 36 hours, Mike took a turn for the worse. He lost a lot of weight (he is now down to 113) after being around 120 and he can not get enough air into his lungs. He struggles to breath when he walks but when doctors test his oxygen intake through the finger sensor, he registers in the high 90's even though his last pulmonary test two weeks ago confirmed that his lung compacity is down 50% since last year. Doctors will not put him on oxygen because his O2 registers so high. He started chemo, Folfox 5 a month ago, scheduled to go every other week and only had one treatment which took him 10 days to recover from. Could not do the second round because food was stuck so we had to have an endoscopy done and today when we went for chemo, his Oncologist cancelled it because his breathing is too bad. They actually said he had Restrictive Pulmonary Disease but they have no idea what is causing his breathing issues. They do not know if the cancer is in his lungs, if it is COPD, scar tissue from surgery..all we know that within 36 hours he struggles for air.
So, I was wondering if anyone has any thoughts about what is happening to Mike and if his symptoms of not being able to get enough air into his lungs but his O2 tests register in the high 90's may have happened to anyone here and if this these are symptoms of lung cancer.
Thank you so much.