Jun 18, 2013 - 7:58 pm
First of all thank you to everyone who has follwed my stories about my husband Mike and his fight with re-occuring Stage 4 esophageal cancer. I can not thank you all enough for the support and prayers which has helped me in more ways than I will ever find the words for but thank you!!
Today was suppose to be our 2nd round of Folfox 5 chemo but due to Mike's breathing issues, he is not strong enough to do chemo until they figure out what is wrong. The doctors are at a loss for when they test his oxygen levels, he is in the high 90's whether he is sitting or walking but he struggles to get enough air into his lungs which exhusts him to no end. After talking with our Oncologist, he said Mike has been diagnosed with Restrictive Pulmonary Disease but when I ask him what exactly is causing this, he says he does not know, it could be so many different things from the cancer has spread into the lungs, COPD, scar tissue from surgery and/or radiation, previous chemo. Since Mike is too weak and is back to weighing 113, he is physically not able to withstand biopsies because of the anesthesia they use when he has his endocsopies wipe him out for 48 hours so they figured the Folfox 5 chemo would treat any cancer in his body, though we have no clue where any other cancer may be except in his esophagus. So tomorrow (Wednesday) we go for a CT scan withour contrast to see if this scan shows anything new since last month's scan at the pulmonary doctors office so we wait to see what the results of the scan show but chemo is on hold until doctors can figure out what is exactly wrong so Mike does not struggle for air, but like the Oncologist also said, there may not be any cure for his lungs which means chemo may be off the table indefinately.