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When was everyone able to start

robswife87's picture
robswife87
Posts: 185
Joined: Mar 2013

eating again?

If you had a PEG when where you able to start eating real food by mouth again after finishing treatment.

Rob is almost 2 weeks out and says he is worse now than 2 weeks ago. Maybe I am just in a rush to get something in his mouth. 

I have noticed he is not spitting as much, but it is hard for him to talk and nothing has been in his mouth, except water in over 3 weeks.

Sandy

CivilMatt's picture
CivilMatt
Posts: 3267
Joined: May 2012

 

Sandy,

Eating was not as big an issues as was the feel of food and since I am in the minority here I will talk about eating not feelings.  Whoaaaa, whoaaaaaa feelings (I digress).

I could always eat, little bites here little bites there.  Sampling foods was ongoing from day 1 of post treatments.  I tried virtually all the suggestions (pancakes with syrup, scrambled eggs, sliced peaches, etc…).  Very early on I found that crystal light ice tea tasted great and so did sweet corn, but plain old  white sugar I could only faintly taste (go figure).

Often, very often I would have one bite, one spoonful, one French fry or ½ of French fry.  Even during treatments I would do that.  You see, I have dinner at my parents (with siblings) every Sunday and if I did not show up I could not hear what was being said about me, i.e. “he looks pretty run down and eats like a bird and talks about some character named Phrannie or Skiffin”  You get the point.

When you are ready try everything, just a taste, just a bite, just something.  For me it was smoothie main course, but always trying things.  Don’t let it get you down, that is no fun.  Many, many times my wife was eating normal food and I was drinking normal smoothies.  The same goes for time spent in the field with my boss.  I would bring along an igloo cooler full of water and protein drinks.

The H&N way is a crazy life,

Matt

 

fishmanpa's picture
fishmanpa
Posts: 1157
Joined: Jan 2013

4 weeks here. Memorial Day Weekend. I'm getting better with solids but now that some of the cold sensitivity is calming down, I can drink shakes and smoothies. I can tell you that at 2 weeks post, I was still in that dreamlike comatose state... It wasn't until the 4th week that I began to come around. The mucositis was cleared up shortly after the 2nd week out. Sounds like Rob's is calming down. I just sort of realized one day I wasn't using as many tissues and it was like "Ohh... cool! I'm getting better" :) 

Hang in there... He'll turn the corner

"T"

yensid683's picture
yensid683
Posts: 248
Joined: Apr 2012

for me to actually eat real food again.  I did keep up swallowing, water, a couple of spoonfuls of jello, and after rads ended, it was about two weeks of forcing myself to actually eat something.  There was no enjoyment, nothing tasted good - or actually had any taste.  I couldn't tolerate temperature extremes.  Cold milk was too cold so I'd nuke it in the microwave so it was more room temperature.  I'd make something soft or wet like soup or eggs and have to push myself to actually eat it.  I was not always successful.

Taste started coming back around week 4, just salt at first but within a couple of more weeks, sweet came in so chocolate milk worked.  I did a lot of chicken soup and could only manage a few noodles and a lot of broth with each 'bite'.  It would take so long to finish that I'd have to put the bowl back in the microwave and reheat it a couple of times.  The chicken chunks just did not work at all.

It was about month 3 when my throat finally allowed me to swallow something more than just those few noodles.  Things accellerated once that happened and it wasn't but a couple of weeks after this that I had my first sandwich.  It wasn't perfect and nothing like it was before, but I could eat.

I'm 11 months out now and can eat just about anything, I still need to sip small amounts of water with each bite, but compared to where I was in the couple of weeks after rads, I'm so much better. 

It will get better, I know it may not seem like it now, but it will.

Peter

jcortney's picture
jcortney
Posts: 436
Joined: Sep 2012

Hurt more than two weeks before the end.  Tell Rob to hang in there, just another week or so will see him over the plateau and small improvements come along.  I'm now four months out and I can see things get better almost daily.  I'm still not eating anywhere near where I was pre-treatement but I did have some fried shrimp last night.  Took a great deal of tarter sauce, but with water was able to get it down.  Fries however were still impossible, sigh.....

J.

Tim6003's picture
Tim6003
Posts: 1501
Joined: Nov 2011

...and I did not eat by mouth for well over a month after tx.  Also, not that it makes you feel any better, I felt my worst just days after tx and did not feel better, not one bit for almost 4-6 weeks.  Awful.  I remember eating a PB&J sandwich,  just half over a month after tx and was so excited ....but did not have much taste for it.

 

My peg tube did not come out until five months after treatement...and I started to use my tube 4 weeks into tx.

Your are not behind, you are just like everybody else, your body is healing your mind is healing and it won't be long before you are enjoying steak and potatoes! :)

 

Tim

hwt's picture
hwt
Posts: 2153
Joined: Jun 2012

If Rob is like most, before long, something will sound good and he will give it a try. My suggestion is to make small portions or you will end up like my husband did with a weight gain from all of the food that I thought I wanted but couldn't eat. And, J, my suggestion to you is to order those fries without salt. Keep trying.........one day it will work

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