SIROD, How are you doing?

Dear Doris -

I am thinking about you as well -- keeping you close in my thoughts, and prayers.  Positive thoughts coming your direction ...

 

Vicki Sam

 

 

 

SIROD said:

Fatigue Is My Biggest Problem

I had an iron infusion with my chemo today.  My wbc 2.0 and rbc 3.31, with each treatment they go lower.  I have two weeks off now.  I am going for four more iron infusion this week and next.  I am waiting for my lymphedema sleeve.

My employer health coverage ended when the Family Medical Leave Ended a few weeks ago.  I am on Medicare but am trying for another program, still haven't heard.  Trying not to become to nervous about it all.  

I have 12 prescriptions that I use on a daily basis along with 4 over the counter meds (Folic acid, magnesium, B12, D and cranberry).  My prescriptions meds aren't cheap either.

While at the CancerCenter, I was hoping to meet up with the health advocate but she went home sick.  Mostly I slept while waiting for the endless dripping.  I will be having the other iron infusions at my local cancer center.

I am doing ok except being tired all the time.  I am glad CC that things are getting better for you except for the thrush.  My oldest son had it when he was born.  

Thought are heard wheezing several times but she didn't hear it when she checked out my lungs.  I don't want that back.

Thank you for inquiring about me CC and Vicki Sam,

Doris

 

 

Hi

Hi Doris,

You are always in my prayers.  I hope things get easier for you.  I know you are a fighter, but I think you could use a break now.  I really hope one comes your way and you start getting your energy back.

Hugs to you,

Ginny

CypressCynthia said:

I am so sorry about your

I am so sorry about your counts and fatigue.  I forget what you are on?  I hate fatigue! Sending big hugs and prayers that this will improve soon.

The financial stuff is scary.  I have been out of work now about 2 months and I am getting worried too.  Hoping I bounce back faster after this chemo.  Receiving it every 3 weeks doesn't give me a great deal of available time unless I do better after this round.

I am pulling for you!!!  I have faith that you will respond, so hang in there and keep fighting. Love you!!!

Doris I hope you will get help

 wishing you recovery and improvements soon

CypressCynthia said:

I am so sorry about your

I am so sorry about your counts and fatigue.  I forget what you are on?  I hate fatigue! Sending big hugs and prayers that this will improve soon.

The financial stuff is scary.  I have been out of work now about 2 months and I am getting worried too.  Hoping I bounce back faster after this chemo.  Receiving it every 3 weeks doesn't give me a great deal of available time unless I do better after this round.

I am pulling for you!!!  I have faith that you will respond, so hang in there and keep fighting. Love you!!!

Thank you, ladies!

Thank you, Ginny, CC, New Flower and Suzanne for your kind thoughts and prayers.  I hope Suzanne that you are right that it's making the pesky cells to tired to do anything but to fall down and die.  My oncologist did offer me a choice of doing or not doing chemo yesterday.  With the slight wheezing that I am hearing now and then, there was no way I was going to skip and allow those cells that have "gone away" to return.  I have seen them over the last 5 years, come and go and come and go....  I no longer have faith that they are really "gone away", they are just hiding until the next opportunity.  No Ginny, there will be no break until the majority of them are on vacation.   

 

I am on Taxol but each treatment the blood counts, keep going lower and lower.  I have 2 weeks off so I hope they recover.  I still do Methotrexate on a weekly basis for my uveitis and that is also a chemo drug which doesn't help with my blood values.  The day after I took my pills, I could tell how much more tired I had become.  I knew if I had to drive that day, I wasn't going to be able to go far.  Lucky for me I didn't have to go anywhere.

 

To say I am tired… fatigue is big time.  Tomorrow I do iron blood level 2 and due to the weekend will have my 3rd on Monday and so on.  It takes about a week to energize me if I remember how nice it worked the last time.  Then I'm back doing Taxol.

 

Thank you again,

 

Doris

 

PS:  I had been thinking since I retired that I could go and help my co-workers out tomorrow and Friday.  However with my WBC as low as 2, I decided not to risk it.   The germs are not with my co-workers but with the material I would be handling.  Ah well, it was a good thought....