Jun 07, 2013 - 10:57 pm
I was in Baltimore most of the day. I had my first follow up with my MO this afternoon. All in all it was very encouraging. I'm doing as well as expected for 6 weeks post Tx. Blood work was decent but several aspects were on the low side as expected. This accounts for the fatigue and gout. As far as the gout goes, I have meds that alleviate the symptoms and I just need to keep an eye on it. It if persists and causes discomfort, I'm to notify her and she'll prescribe an additional med to help control it. She feels it will resolve itself as I heal more. The same goes for my blood work. Counts aren't low enough to warrent a transfusion. It's just a matter of time until my body manufactures enough new blood cells to compensate for the losses.
My throat is looking much better but my mouth, as expected, is still pretty torn up. That accounts for the pain and burning. She said to expect that to take up to a full year before the sensitivity to hot and cold lessen and go away. There is the chance that one or the other or both may always be an issue. The same goes fpr the sensitivity in my teeth. Now doesn't that get all that! I can taste the sweet stuff but it hurts to eat it. However, that didn't stop me from having a snack size Klondike bar!
Sidetrack to food for a moment :) Today was Marcia's birthday. So we celebrated at Mo's Seafood in Little Italy down town. Marcia had the jumbo crab cake with coleslaw and fries and I had the seafood stuffed rockfish. A fillet of rockfish (stripped bass) stuffed with shrimp, scallops and crabmeat, broiled with butter, served with roasted potatoes and a mustard cream sauce drizzled over it. It came with a side of veggies (corn on the cob, broccoli, asaragus and carrots). I was able to eat quite a bit of it and it was glorious!
Ok... back to business... I've been battling my 3rd case of thrush and it's responding to the Nystatin. I have to take it for another 7 days and that should take care of it. The only thing that has me a little down is my shoulder. It's definitely compromised and we won't know how much will come back for at least a year. The bottom line is going to be rehab. I have to take this bull by the horns and consciously make the effort to exercise it. The only way to maximize recovery is to work the poo out of it to strengthen the muscles and push it to the limit. I'll be looking into a gym membership this week.
A major concern for all of us is recurrance. There's a thread on that subject up now. I asked her about that. I'm concerned because I had my PET done in December of 2012. At that time, it showed the cancer in my lymph nodes and a slight light light up in my right tonsil. I had my tonsils taken out (palatine and lingual) and the cancerous lymph nodes removed (as well as an additional 24) between Dec. 21st and Feb. 7th. I started treatment March 14th, a full three months from the PET scan. I'm banking on the treatment taking care of any of Jack's minions that may have migrated during those three months. She is very confident they got it.
I asked my MO about recurrance. She said (paraphrase from memory):
'We'll never tell you you're cured. You'll always be a cancer survivor. The critical period is the first two years. We'll be seeing you every three months for the first two years. You'll be scoped in July and we'll schedule a PET for August. Between two and 5 years we'll see you every 6 months. You'll be scoped and scanned on the same schedule. At 5 years we won't need to see you anymore.'
I visited my rad techs and chemo and rad nurses to say hi. Hugs and smiles all around. So that's the deal... so far so good.