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pain increasing things moving to fast - update

jim and i's picture
jim and i
Posts: 1599
Joined: May 2011

Everyday Jim's pain is increasing and breathing is starting to be a problem. Jim's color is not good either. He refuses to take the pain meds because then he will not be able to go fishing in the mornings. He is very sensitive to pain meds. The Lortab makes him sleep almost 24/7 and he can't be left alone because he starts wondering outside, usually in the nude. We don't see the oncologist until Friday. I am praying he just has an infection or has the flu since I am getting over the flu. Please pray for him.

Debbie

Jim;s daughter talked him into going to the ER. Not the flu, pneumonia or infection so guess we wait until Friday afternoon for oncologist visit. Thanks for the prayers and encouragement.

Debbie

Skiffin16's picture
Skiffin16
Posts: 8071
Joined: Sep 2009

You guys are top on my prayer list....

I do have to admit though..., the thought of a nude flounder fisherman wondering out and about in this weather gave me a chuggle..., LOL.

John

hwt's picture
hwt
Posts: 1906
Joined: Jun 2012

You have mine.........

donfoo's picture
donfoo
Posts: 1206
Joined: Dec 2012

Debbie,

So sorry to hear about Jim's current state. Please do try to get him to manage his pain and stay hydrated and such until Friday. I am praying for you both. Don

fishmanpa's picture
fishmanpa
Posts: 1113
Joined: Jan 2013

Positive thoughts and prayers coming your way!

"T"

phrannie51's picture
phrannie51
Posts: 3685
Joined: Mar 2012

and prayers Jim's way. 

Would he be willing to go to emergency, in order to be seen by the Oncologist sooner?

p

jim and i's picture
jim and i
Posts: 1599
Joined: May 2011

His daughter finally told him he could ride with her or go in an ambulance so he has agreed to go to ER. Will update later.

Debbie

Ladylacy
Posts: 471
Joined: Apr 2012

So sorry to hear about your husband.  My husband takes lortab 10-325.  He takes 2 pills every 6 hours sometimes sooner depending on the pain.  He doesn't like to take the medication either.  But, and I know each person is different, he doesn't sleep 24/7 when he takes it and they just increased the level from 7 to 10.  He sleeps for a while and then gets up and does what he wants.  I would call the doctor, even your primary, and tell them what is going on.  Maybe a lower dosage or cut the dose in half or a different pain medication.  Friday is a long way off yet, to my way of thinking anyway.  I have even had the doctors talk about the fentayl(?) patch for Joe, but having read so much about it, I keep saying no.

My husband had a complete laryngectomy and breaths thru a hole in his neck.  His cancer, as I think I told you before, had gone to the cervical of his esophagus (2nd primary) and then after 3 months NED reocurred and spread to his right lung.  I know you are worried and scared.  I find myself watching my husband, too closely at times and am always asking him if he is okay. 

Good thoughts and prayers coming your way -- Sharon

longtermsurvivor's picture
longtermsurvivor
Posts: 1785
Joined: Mar 2010

the blood level of narcotic can have a very narrow window of efficacy.  A little too much and some get very drowsy.  Not enough and they have unremitting pain.  Most people can be titrated to the required dose.  One way to do this is to cut the tablets into small portions, maybe into quarters.  Then have him take one every 30-60 minutes until comfortable.  They can find a compromise that will work for him, but this is always worth a try right now.

 

Pat

CherieLW's picture
CherieLW
Posts: 425
Joined: May 2013

Jim and Debbie,

Sending prayers and well wishes!  I hope Jim improves quickly! 

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Debbie,

I relate to the other survivors on here, but I truly admire all the great caregivers – you are definitely at the top of that list.  Sending my best to you and Jim!

Positive thoughts coming at ya!

Greg

 

Laralyn's picture
Laralyn
Posts: 441
Joined: Apr 2012

I hope the diagnosis is just that he's got a touch of the flu.

Duggie88's picture
Duggie88
Posts: 535
Joined: Feb 2010

Debbie

 

I am with Don. Take good care of him and get him top the office on time and hopefully it is just the flu. We are all pulling for you both.

Take care

fisrpotpe's picture
fisrpotpe
Posts: 1334
Joined: Aug 2010

more prayers continue for Jim and You. 

i don't mind seeing nude fish but nude fishermen..... not!    LOL

looking for good news come fridays oncologist appoint

john 

katenorwood
Posts: 1821
Joined: May 2012

Debbbie,

This crazy walk seems endless.  Jim is very loved, and I know you are doing everything possible.  I will second the opinion, you are a fantastic caregiver.  My thoughts are with you all.   Katie

Jan Trinks's picture
Jan Trinks
Posts: 466
Joined: Apr 2009

Debbie:

 

Sorry to hear about Jim's pain.  Will be anxious to hear update from er/oncologist visit.  It's so hard to have them doing so well and then as you say things moving too fast!  Good luck my friend and as always praying for y'all.  Good luck and God Bless!

 

Jan (Basketcase)

 

 

Jan Trinks's picture
Jan Trinks
Posts: 466
Joined: Apr 2009

Debbie:

 

Sorry to hear about Jim's pain.  Will be anxious to hear update from er/oncologist visit.  It's so hard to have them doing so well and then as you say things moving too fast!  Good luck my friend and as always praying for y'all.  Good luck and God Bless!

 

Jan (Basketcase)

 

 

wolfen's picture
wolfen
Posts: 1194
Joined: Apr 2009

Will be thinking of you and Jim as you fight through another round in what seems to be a never ending battle. Hoping his pain can be better controlled and he will start to get his color back. I know it is a scary, helpless feeling.

Luv,

Wolfen

CivilMatt's picture
CivilMatt
Posts: 2924
Joined: May 2012

Debbie,

Prayers and good thoughts for Jim and for you.  Keep him comfortable.

Matt

Tim6003's picture
Tim6003
Posts: 1490
Joined: Nov 2011

Feels like I have been out of the loop forever, crazy stuff going on with my mom's mental state and it has been like taking care of a 6 year old child that is STUBBORN.

 

Anyway...whispered a prayer for Jim, then wanted to send you this note I did so.  Gosh durn it I want Jim to be well and I just wanted you to know I'm thinking of you both.

 

Tim

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