Jun 01, 2013 - 10:05 pm
I joined another site also, so I hope I am not boring people with the story again. Just nervous. My husband was diagnosed in 2005 with a Gleason 9, 10 of 12 positive, cores ranged form 10-100% involved. Mostly 70-90% involved. His PSA was only 5 at time of diagnosis.
Treated with hormones, radiation, then a chemo study (VA, Stanford doctor). His PSA never zeroed, but has risen steadily, doubling about every 2 years. Now it doubled in 8 months (now at 1.5).
He is having a bone scan on June 5, then a CT on June 19.
My concern is how low his PSA was at the start for such an advanced and aggressive cancer.
I read someone else's post about everyone saying "Well my husband has the same thing and he's fine. It's not a big deal." I do get tired of hearing that. But maybe I am too touchy and over reacting.
I am going with him to his visit with the VA on July 1. I have had the feeling that none of the doctor's have even looked at his chart or the start of this whole thing. Perhaps I am just building up an irrational anger. But we moved to a new state and I want to make sure they look closely at the original diagnosis. They all kept saying "We don't worry until the PSA hits 2", but I had read in a VA newsletter from some years ago that Agent Orange patients should be looked at closely when the PSA returned to 1 or higher.
A little straightforward honsesty would be nice and not the feeling that we have just been patted on the head.
The waiting is awful.