May 25, 2013 - 2:24 pm
Hello my dear old and new friends,
Sorry, I have not been posting lately due to high fatigue and side effects from experimental drug.
This week marks my 5 years Survivorship from stage IIIC and 1 year mBC. It has been a wild ride with incredible swings up and down, being in Marianas Trench, and climbing back. I would like to thank you everyone here on this board who has helped me getting through 5 years and many Pink Angels who are watching over and keep us safe.
I had my Scan last week and it is stable. Yeah!!! my oncologist is very pleased because she was very concerned about change from cytotoxic Chemo to anti-estrogen and experimental drug BKM120. BKM is PI3K phosphatidylinositol 3'-kinase inhibitor . Molecular testing of my breast tumor tissue came back with results showing that I have no alteration in PIK3CA and PTEN and benefits for me are unknown and will be identified by the end of this study. My oncologist thinks that we must use every opportunity, including unknown benefits , so where we go taking 2 capsules every day and writing a dairy about my overall health, side effects, mode, dreams, and desires trying expand my role beyond "human subject" and experimental rat. Labs are taken every two weeks, yesterday was 14 tubes, pages of questionnaires. personally think this drug can be used many other purposes: like to for loosing weight very fast, or having weird dreams under hypnotic treatment.
Wishing everyone be healthy and continue this fight to the full victory