May 24, 2013 - 8:31 pm
8 months after surgery to remove my husband's esophagus and pull his stomach up to make the new one, we learn the cancer is back. It is back at the connection site in the esophagus and is some lymph nodes on both sides of his neck, in the lining of his lungs and around his heart. We could not undersstand why in a matter of 72 hours he went from almost going back to work part time to now he can't catch his breath and is tired. Pulmonary doctor says he has scar tissue in the lungs from radiation so he can not do radiation again and he is too weak to have another surgery (his weight is 116). Tuesday (5/21) he started his first round of chemotherapy called Folfox and he will be re-scanned in 3 months to see if the check to see if the chemo is working or not.
Folfox is suppose to have some nasty side effects I read from sensativity to cold to the point if he drinks something cold it will feel like he is swallowing broken glass and grabbing things out of the frig will sting his hands so he will need to either wear gloves or have a pot holder available. He may also have burning sensations in his hands and feet, severe fatigue, nausea, vomiting, diarrhea or constipation just to name a few. We are being told it will take a few treatments for this all to set in. We know that the cancer will never be cured and we are being told it is not a matter of if the cancer will win it is a matter of when it will win. We will go through chemo until we realize he either can not physically handle it or the cancer is not responding.
So disappointing that my husband was this close to getting back to some what of a life and now cancer has taken that away. I wonder when the chemo will do more harm than good and then wonder how the end will come for my husband. Any feedback on personal experiences would be appreciated.