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Done with chemo/Now in hospital

camul's picture
camul
Posts: 2135
Joined: Dec 2010

Had ct scan this am.  No fluid in chest.  Pain is actually from 2 emboli (blood clots).  So I came home, and got a phone call about an hour after from the on call oncologist.  I never met this one and I think he thought I was trying to get out of coming in when I asked how long I had to be here. He explained it was life threatening. Which scared me and I was not feeling like a million bucks.  The onco who admitted though was really nice, fun personality, no scare tactics, just spelled it out, that I definately am bed bound for 72 hours to make sure the clot does not move prior to the coumadin and Lovenox kicking in.

I can only get up to use the rest room, but I did cheat and walked around the floor.  Had to get my bearings and I was looking for popcorn.  Cant imagine 5 days in here.  But will do what I am told.  My son stayed with me for about 6 hours.  My bp keeps dropping to 80/50 or lower, last one was 76/48.  Then it will come back to 90/60.   This whole thing sucks.  I will be on these new meds for at least 6 months. 

ER and oncall doctor ordered head ct tonight.  No tumors in brain, but there are so many tumors all over my skull and cervical spine, they both think that is causing the headachs.  

This all sucks,

Hugs,

Carol

 

 

Did not do chemo number 12 today.  Instead having a ct scan in the morning from my shoulders down through the pelvic/hip region, as well as an xray on my left knee, shin bone.  Followed by a bone scan on Tuesday.  There is a tumor now just below my left knee that I can feel (throbs) down about 2 inches.  The doctor can feel it through the skin.  The CT Scan is to see if the tightness in my chest is from fluid or if it has spread into the lining of my lungs.... and to check the liver.

He asked me if I am ready to start Hospice, I said not yet!  I want to get the results of the scans before I make that leap.  I do not want to cut out the possibility of something new coming up that may give me some new hope, and I can start on hospice in 2 weeks as well as this week. 

It all just sucks that my mind is so good but the beast is having a feast on the rest of the body.  Told him I still want to get that last trip in to Sacramento!  He just shook his head and smiled, as he knows how stubborn I can be.  I am so hoping that the chest is fluid that can be drained so that I get some relief! 

Have a great weekend everyone.  I am certainly going to try.  Gotta make every day count.  Going to dinner with my brother-in-law and my son now, he is on his way back to Sacramento, just passing through.  Determined not to let this get me down.... 

 

Hugs,

Carol

carkris's picture
carkris
Posts: 4529
Joined: Aug 2009

Carol,  I think you are wise to wait for your scans to see what you are dealing with and also to live one day at a time as we all must do.  I am mad the beast is being brutal, and hope there is something that will come along to help. Hugs

carkris's picture
carkris
Posts: 4529
Joined: Aug 2009

Carol,  I think you are wise to wait for your scans to see what you are dealing with and also to live one day at a time as we all must do.  I am mad the beast is being brutal, and hope there is something that will come along to help. Hugs

Jean 0609's picture
Jean 0609
Posts: 2367
Joined: Jun 2010

I love your attitude.  Keep fighting and kick that beast right in the a**!

 

xoxo,

Jean

 

camul's picture
camul
Posts: 2135
Joined: Dec 2010

I will donwhat I can.
Hugs,
Carol

jojo2
Posts: 28
Joined: Apr 2013

I hope and pray you get that fluid drained, make that trip and find a new drug combo to try when you get back. You'll know if and when. It ain't over til the fat lady sings! I know you are living life to the fullest and appreciating every moment. Prayers and strength for you. jojo2

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

 

I think you're smart to have the tests done and then make decisions.  Make plans and take the trip.  Thinking of you and praying.  Hugs, Linda

Lynn Smith
Posts: 1265
Joined: Mar 2011

Yes wait for the tests.I believe in MIRACLES and think your doctor is to quick to make a decision.It's your decision on what you want to do. I think you're going to fight.

Lynn Smith

camul's picture
camul
Posts: 2135
Joined: Dec 2010

This isn't a rush decision and I am calling the shots. My body is plumb worn out. He has been very aggressive in this fight and I certainly have not been under treated. As usual he threw out info and I will decide. He is not saying it will betoday or tomorrow, what he is saying is that my body has not responded to 2 1/2 years of weekly chemos, we have tried 5 different chemos and the cancer is continuing to grow regardless of the treatment. The chemo and cancer have worn my body down so now it is time to look at some quality to the time I have left. I made him promise me when Instarted in chemo in January 2011 that he would be honest with me when it was time to stop.
There is always the possibility that after no chemo for a while, that my body may recoup some and I may be strong enough physically (this would be my miracle) to try again. But right now I cannot physically do more so it is time to enjoy my life. I am not giving up, but facing my reality at this time.

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Carol, this all just sucks.  You are and have always been a fighter.  Yes, make every day count.  Hugs to you. xoxoxo Lynn

Patti1967
Posts: 186
Joined: Mar 2013

Carol you are simply awesome:)  I so hope you enjoyed your dinner!  Hugs!

Patti

New Flower
Posts: 4132
Joined: Aug 2009

Carol

i admire your courage and praying for stable results from scans

this experimental drug I am on BKM120 please check I know they are recruiting at different locations including Sacramento and Davis

keep us posted and enjoy weekend

RozHopkins
Posts: 477
Joined: Dec 2010

Carol I don't think I would be as brave and determined as you are right now.  I am more a negative type always have been yet when my treatment was done I never nose dived or sank into life long bouts of depression.  Seem to cope better with disaster rather than daily dredge.  We do what we have to right.  Chin up gall, thinking of you at this end.  

Josie21
Posts: 364
Joined: Nov 2012

Hi Carol,

I hope the weather is perfect this weekend where you live so you can enjoy the holiday weekend.  My pink sisters and brothers on this site have taught me to enjoy every day because no one knows what tomorrow will bring.  I am glad you are waiting for the scan results before making any decisions.  After that, only you know how your body feels.  If the tightness in your chest is fluid that can be drained, you would probably feel so much better.  Why not see if something new can be done.  Whatever you decide, you are a role model to us all and we will all be here for you.  

Thanks for showing me how to fight health challenges with class.  When I was diagnosed I fell apart.  I wish I had this site so I could have been inspired by true pink warriors such as you.

Hugs to you,

Ginny

CypressCynthia's picture
CypressCynthia
Posts: 4017
Joined: Oct 2009

Carol, you are an incredible warrior and inspiration to us all.  I would wait for the scans too.  You will know when it is time for hospice and, hospice, I believe, can be such a wonderful help. 

But, right now, praying for good news and sending big ((((hugs)))).  Love you lots!

Faith_In_God
Posts: 76
Joined: Mar 2013

I hope the CT shows only fluids that can be drained. I wish they can stabilize your bone mets.

I love your attitude, please keep your spirits high. I remeber my surgeon once told me that high spirits account for 60-70 % of the healing process.

 

Good luck and God bless

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Hi Carol,

I love your courage and strength.  I 've seen your attitude stumble a bit once or twice.  But you al ways get right back up!  I am convinced you will know  when the time is right.  Enjoy life my friend!

Hugs,

Linda

 

Double Whammy's picture
Double Whammy
Posts: 2336
Joined: Jun 2010

Isn't dealing with mets enough?  Thanks for the update and take advantage of this respite in the hospital as crappy as it feels.  I hope the clots dissolve soon, you can get home soon, and you will feel stronger without the chemo.  You are indeed an inspiration.

Suzanne

New Flower
Posts: 4132
Joined: Aug 2009

While you are the Chief Please follow your doc orders sending positive thoughts

camul's picture
camul
Posts: 2135
Joined: Dec 2010

You would think so. Now trying to get the cumadin sp? to a theraputic level. Was hoping to go home today but it will be Wednesday at the earliest. Need to be btwn 200 and 250 for 24 hours. Today it is still only at 1.3 so he upped the cumadin and I have gotten 6 shots of loveden? in the stomache. I hate these they burn, remind me of the rabie shots I had as a child which was 14 in the stomach. Hoping all of this works. Have step grand daughters wedding at the Temple Friday morning!
Carol

camul's picture
camul
Posts: 2135
Joined: Dec 2010

Staying positive is not always easy but I am trying! The drs and nurses and support staff have been amazing, as have my family. I really am blessed.

Hugs and thanks,
Carol

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

I am hoping the best for you. If you feel that it is time to stop chemo and enjoy life then that is what you should do. I know you will keep fighting in your own way and live life to the fullest every day.

You will continue to be in my thoughts.

Hugs,

Georgia

Bella Luna's picture
Bella Luna
Posts: 1575
Joined: Aug 2009

Carol... thinking of you and sending prayers out your way.

mommaellen's picture
mommaellen
Posts: 190
Joined: Nov 2012

Sending prayers and good thoughts your way.

 

Hugs,

Ellen

hope67's picture
hope67
Posts: 168
Joined: Apr 2013

I hope your stay will be bearable.

I am sending you tons of hugs, enjoy each day as much as you can.

Hugs, Carmen

Patti1967
Posts: 186
Joined: Mar 2013

SO SORRY to hear this Carol.....prayers and HUGS coming your way:)

Patti

TexasCharlie's picture
TexasCharlie
Posts: 74
Joined: Nov 2012

Carol, I'll be praying for you. 

Charlie

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

 

Stay in bed and no more roaming the halls looking for popcorn!  Let the popcorn find youSmile  Hugs, Linda

camul's picture
camul
Posts: 2135
Joined: Dec 2010

The popcorn did find me! Breakfast comes at 546a, lunch 1145a dinner at 445a. Then nothing for 13hours! A puffy gal could starve, laughing again as I look at my stock pile!

sbmly53
Posts: 1484
Joined: Jan 2010

You never cease to amaze me. All prayers and positive thoughts are with. You.

 

Sue

 

kmenurse's picture
kmenurse
Posts: 223
Joined: Apr 2013

Your Amazingly, Strong! Positive! Attitude! is an inspiration to us all.... God Bless You!!!! I am sharing my single pink tulip I found on our HL lake camp property with you for luck.... Kathy

 

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

The turn of invents have floored me.  I am so sorry.  

You have shown a lot of courage facing this adversity.

Best,

Doris

Clementine_P's picture
Clementine_P
Posts: 395
Joined: Feb 2011

I hope that you find solace in the decision that you make.  I'm sure you will do whatever is right for you and your family.

Best of everything,

Clementine

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