May 24, 2013 - 7:22 pm
Had ct scan this am. No fluid in chest. Pain is actually from 2 emboli (blood clots). So I came home, and got a phone call about an hour after from the on call oncologist. I never met this one and I think he thought I was trying to get out of coming in when I asked how long I had to be here. He explained it was life threatening. Which scared me and I was not feeling like a million bucks. The onco who admitted though was really nice, fun personality, no scare tactics, just spelled it out, that I definately am bed bound for 72 hours to make sure the clot does not move prior to the coumadin and Lovenox kicking in.
I can only get up to use the rest room, but I did cheat and walked around the floor. Had to get my bearings and I was looking for popcorn. Cant imagine 5 days in here. But will do what I am told. My son stayed with me for about 6 hours. My bp keeps dropping to 80/50 or lower, last one was 76/48. Then it will come back to 90/60. This whole thing sucks. I will be on these new meds for at least 6 months.
ER and oncall doctor ordered head ct tonight. No tumors in brain, but there are so many tumors all over my skull and cervical spine, they both think that is causing the headachs.
This all sucks,
Did not do chemo number 12 today. Instead having a ct scan in the morning from my shoulders down through the pelvic/hip region, as well as an xray on my left knee, shin bone. Followed by a bone scan on Tuesday. There is a tumor now just below my left knee that I can feel (throbs) down about 2 inches. The doctor can feel it through the skin. The CT Scan is to see if the tightness in my chest is from fluid or if it has spread into the lining of my lungs.... and to check the liver.
He asked me if I am ready to start Hospice, I said not yet! I want to get the results of the scans before I make that leap. I do not want to cut out the possibility of something new coming up that may give me some new hope, and I can start on hospice in 2 weeks as well as this week.
It all just sucks that my mind is so good but the beast is having a feast on the rest of the body. Told him I still want to get that last trip in to Sacramento! He just shook his head and smiled, as he knows how stubborn I can be. I am so hoping that the chest is fluid that can be drained so that I get some relief!
Have a great weekend everyone. I am certainly going to try. Gotta make every day count. Going to dinner with my brother-in-law and my son now, he is on his way back to Sacramento, just passing through. Determined not to let this get me down....