May 18, 2013 - 9:11 pm
Ten years ago I was diagnosed with a low grade glioma measuring 6.5 x 4.5 x 4 cm. Symptoms similar to a stroke following a grand mal seizure. I was 47 at the time in what appeared to be excellent health without any risk factors for stroke. That's why a neurosurgeon was brought in who made the diagnosis. In general age over 40 and tumor diameter over 4cm were considered negitive indicators for long term survival. My tumor's axial length as grown from 6.5 to 11 cm in the past ten years yet it has been only in the past year that I've tried any treatment because the tumor was deemed inoperable. After 12 months on Temodar I'm taking a break because my tumor's growth seems stable and the drug is doing nothing to reduce size. Would like to hear from anyone who has had treatments other than surgery, radiation, and/or chemo for oligodendroglioma.