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Kudos to Angelina Jolie

scatsm's picture
scatsm
Posts: 251
Joined: Apr 2013

Kudos to Angela Jolie for going public about her BRCA status and the difficult decisions to be made around it. As a BRCA 2 survivor of both Ovarian and Breast cancer, I only wish I had known about genetic testing after my mother died of BCA in 1996. This gene mutation has been around since the early 1990's but never a word was said to me until after my OVCA dx that genetic testing was recommended. Hopefully Jolie's star power will help awareness of the BRCA gene mutation and help many others to avoid these devastating diagnoses.

 

poopergirl14052's picture
poopergirl14052
Posts: 1176
Joined: Nov 2010

Woman need to know this.. I just wish it wasn't so darn costly...as many woman won't have this this due to money. It should be free..may save on chemo,surgery,radiation  etc. This is part of woman's health too.....val

 

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Wow when I heard this I truly had a great sence of a woman in the limelight trying to use her experience to help and guide other women.  Kudos Angelina!Smile

Lets see what Obamacare holds for genetic testing, but surely don't hold our breath as probably be even more expensive.

Jan

 

 

mopar
Posts: 1954
Joined: Apr 2003

Coming forward is so brave, but making that choice to have the surgery is even more courageous.  And KUDOS to you, also!  Your survivorship speaks to your courage as well.

(((HUGS)))

Monika

6kats's picture
6kats
Posts: 12
Joined: Jul 2009

Bless her for using her name for awareness  for both cancers not just Breast C  we all need help

kat

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

I can't help but chime in here.  I agree with all of your comments about her bravery and the attention her situation brings to breast and ovarian cancer.  The sad truth, however, is that the BRCA mutation is not a mutation that makes cancer.  It is a mutation that compromises methylation.  Compromised methylation is what can lead to cancer.  There are simple, dietary measures that can be taken to manage this mutation and the methylation it effects, primarily eating cruciferous vegetables.  I wish this information was more available to women struggling with this decision.

http://www.naturalnews.com/040349_Angelina_Jolie_breast_cancer_surgery.html

 

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Very interesting article tethys

mopar
Posts: 1954
Joined: Apr 2003

Thanks for the info.   I'm definitely all about prevention, natural approaches, etc.  If in fact this information is accurate, so many women could have been spared such a difficut approach.  I'm aware of the role of nutrition in our health, but was not aware of the mutation process.  Thanks for posting.

(((HUGS)))
Monika

 

Alexandra's picture
Alexandra
Posts: 1260
Joined: Jul 2012

Honestly I don't think that the spin media puts on Angelina's decision to manage her cancer risk is helpful.

I am glad that she drew attention to genetic testing and elevated risk of breast and ovarian cancers. It's sad when medical education comes from Hollywood. I don't like that her preventative mastectomy is presented as being a good mother to her children or the only choice in her situation.

On the day when she went public the reactions from people (mostly males) who never heard about BRCA were less then positive and downright dumb. "They were fake to begin with...", "She can afford her own mammogram machine", "Brad Pitt is now stuck with her and a busload of kids...", etc.

scatsm's picture
scatsm
Posts: 251
Joined: Apr 2013

Tethys, this article was awful. If there was a message in there about alternatives to preventive mastectomy for BRCA positive women, it was lost in sensationalistic accusations against women and the medical profession. As a woman with BRCA2 who chose to have both breasts removed when only one had cancer, I am disgusted by this writer's vitriol. And, while I don't know you, I am saddened that you would think this an appropriate article to share.

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

Scatsm,

I'm sorry you have chosen to be offended by the content of the article.  While it is sensationalized often that is what it takes to get people's attention these days.   Pure science often just serves to confuse people.  The article contains accurate information that can be confirmed from a variety of sources, including the National Institue of Health.  I too am BRCA positive and my mother died of breast cancer.  So I have put a lot of thought, time and research into my decision.  The point is that women have the option to become educated when considering such a procedure for a cancer they don't have.  And they aren't going to get this information from most doctors. Others feel comfortable following their doctor's advice, and that's okay too.  But we do have the choice.

Congratulations on your survivorship.

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

http://well.blogs.nytimes.com/2013/05/20/no-easy-choices-on-breast-reconstruction/?smid=fb-share

 

Women considering this procedure should also shop around for the right surgeon.  Your local surgeon may not be the best option. The way the surgeon performs the surgery can make a huge difference in the results.

JoWin615's picture
JoWin615
Posts: 142
Joined: Feb 2011

and choices. I'm really glad that Angelina went public with her decision to do prophylactic surgery, because it raises awareness about BRCA testing and OVCA. What one does with the result of the testing is a highly personal decision, arrived at, one would hope, by extensive research into all the types of treatment available. 

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

It's about choices and doing our own resarch, therefore, in the end DO WHAT'S BEST FOR US, not the other woman.  Great to see different opinions as that makes the world interesting.

Cheers to lots of options, whether good or bad in our eyes~

Jan

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