May 11, 2013 - 5:12 pm
I had ileostomy 19 years ago due to UC - had lost 55 lbs and 22 blood transfusions. Then J Pouch - It was a long period of adjustment, but had no regrets whatsoever. About six months ago it started to be more painful then usual sitting, getting worse every day. I had a CT scan, at one time they tried to drain the lump. These were at world reknown hospitals. I ended up going to the emergency room of one of the colo-rectal surgeons in area. I went today and still in shock - and they are still going over pathology etc. Doctor said I had colon cancer and even he was mystified, when I have no colon. All of the sudden Evidently it is around the lump.He wants to put me in for chemotherapy and radiation - and mentioned I may loose some of my hip bone?? - I am going to see the oncologist Wednesday as when I saw him a few weeks ago he said there was no need to worry as did my family Doctor. I think they thought I was a hypochrondriac - - Oh yes, all Doctors but one wanted me to remove my rectum - 19 years ago - but a young intern said to do what I felt best - and a great military reserve Doctor specialist stepped in and saved my rectum. I kept insisting something was wrong with my CEA?? high blood work - but was told that was due to the type of surgery I had had - etc. misc. I feel like I am in one of those hospital spinning doors - I had to push the Doctors because of my consistent pain. Unfortunately I was brain drained as Dr showed me the pix but did not ask him those questions weighing on my brain today. Thanks for "listening"