May 11, 2013 - 1:30 pm
Just a quick report on my husband. Yesterday was the 23rd of 33 treatments so we start the 10 day countdown on Monday. He had two double-rad days, one due to the machine breaking down and one to avoid doing his last day after the three day holiday break for Memorial day. So, it's a tidy schedule with two M-F's to go.
He has a pretty severe mucositis sore that showed up during week two, surprising the doctors that it came so early. It's in a place wher he has a jutting molar and it just has no chance to heal. It was painful at first and we were sure that it was an indication of things to come, but no other sores so far. None! I would like to point out that we heard from our rad onc that it may help to make the mouth tissue cold by holding ice chips or cold water in your mouth before going in for rads. My husband, for every single appointment, has brought a thermal cup filled with ice and water and he swishes with it while he waits in the dressing room.
I know that some are reporting that their teeth are sensitive to cold so it may not be possible for them, and of course, we don't know if it's the reason that his mouth is doing so well, but other than that one sore he is almost completely pain free, on no pain meds. I'm sure it will get worse over these two weeks and beyond but for now we are so grateful!
Also, he has a significant band of hair loss along the whole back of his head from ear to ear. The rad onc was surprised as are we. It's like four inches in height evenly acroos his whole neck and back of head, even though they are aiming more to the left side. Anyone else have this?
My husband's reaction to the second cisplatin dose was not so great. We had all the big guns anti-nausea meds and he still felt sick for a week. Eating has been a challenge. He also had an all-over body rash (not itchy, thankfully) that also surprised the doctors. Eating has been the biggest challenge due to nausea and he has laost 9 pounds so far. If he loses 9 more, they'l do a nasal feeding tube. Hard to know if it'll come to that.
Mucous and saliva so far not too bad. All in all going well, hoping it stays that way, but ready if it doesn't.
I know I don't post much, but I have been reading many of the posts daily. My heart breaks for so many going through the hardest of times. I'm amazed by the courage of every person here, and as I read more, I become more and more invested in how each person is doing at any given time. This is the kindest, bravest group of people I have had the good fortune to meet.