May 09, 2013 - 4:15 am
Without knowing it you have all been supporting me since January when I discovered this site. I've been lurking in the background and learning from your experiences.
Short version about me. I'm 45 yo female, living in Australia. Just be Christmas I was Dx with Stage 4 Colon Cancer (Sigmoid) with mets to the liver. Obviously this rocked my world in a bad way, like everyone else on here I'm sure.
I was initially told that surgery wasn't viable as my liver had to many tumours and was placed on a cocktail of Oxyplatin/Avistan/Xeloda. After 4 rounds the tumours had shrunk 30-40%. CEA started at 740 but after round 5 was at 18. Ive had the 6th round and awaiting those results. Onc wont do more that 8 rounds with the Oxy so that is being dropped soon, 2 more to go. I'm torn about this, I hate how I feel after this cocktail but I am having some results. I'm nervous about how things will change when the Oxy goes and at the same time excited not to feel so dodgy. I've been also told if I keep responding the same and then maintain, that surgery may be an option later in the year.
What else, I've been lucky with my work as my employer has been a perfect example on how to support a sick employee. I work from home Wednesdays and if I don't feel up to coming in and can go home early with no guilt if a day becomes too long - in fact they often nag me to go!
I also have a great family and network of friends, who support me in ways that I would never have imagined. Still, there is nothing like being around people who are going through what you are, and that is what I have been getting from reading the posts in this forum. At the same time it makes me sad that so many are on this trip.
What else? Don't want to bore you, I know that my story is not new. Oh, I'm planning a trip to Vegas in September, then up to Northern Cal to visit a friend, that is giving me something to look forward to and I'm ridiculously excited about it. We must have things to look forward to.
Thanks for listening (or reading)