May 07, 2013 - 12:41 pm
Yesterday, we had to head down to Johns Hopkins for a follow-up. Firstly, they had to take out the safety buttons from my PEG implant. That was a piece of cake. Then we met with the nutritionalist and went over the game plan again and how I was doing. After we got the hang of it and found the right flow rate, it's been easy as well. It's just still weird ;) As it turns out, I'm NOT to try and take on any soft solids or heaveir than water liquids by mouth until I heal a bit more. My throat is looking better (and feels better) but my tongue feels like one big open sore. Thank goodness for narcs and Magic Mouthwash! Apparently, the rads burnt the poo poo out of my throat, tongue and epiglottis and they need time to heal. Both my MO and nutritionalist feel I should be able to start trying some soft solids next week. I was scheduled to get a round of hydration and magneseum but my blood woork showed a marked improvement from last week. My blood counts look much better as did everything else so they didn't have to do that.
All in all a great report. We had a friend drive us to and from Baltimore as I'm really in no shape to drive any long distances. When we got yesterday around 5pm, I promptly passed out in my chair and didn't awaken for 4 hours. A very short time awake, some fluids and nutrition and I was off to sleep again and have been out of it sans bathroom breaks until almost noon today! It was funny... they asked how I was doing and I told them I'm still really hurting. They told me the same thing you've all said. Believe it or not, despite how you feel and look, you're doing great and it will get better! ~lol~