May 06, 2013 - 1:11 pm
On such a sad morning since I just found out about Wolfen, I feel bad asking for prayers and pocket tucks.
I have my another Swallow Study for 8am tomorrow and a therapy session right afterwards to develop a plan to begin eating at home both by mouth and tube depending on how study goes and how I tolerate it at home.
I dont think they will just set me free, I'll probably be told what to eat day by day. Even though I have been eating foods at therapy, I am a little afraid to do it alone at home. We buildt a stratgy as to bite, chew, swallow, cough, water, cough and AH to make sure it is in the same tube, a little annoying but not eating or drinking way more annoying.
If you could find a little extra prayer time for me while praying for Karen and Vivian and Ladylacy who is facing the same outcome soon, I would appreciate it.
You are all my friends and I care for you all deeply
Go with God friends,