May 05, 2013 - 1:34 pm
On April 8 We received a call that an MRI showed multiple areas of "lymphoma like" tumors on my husbands brain. We were admitted thru the er at a very reputable area hospital. April 10 my husband went under for a brain biopsy by one of the best neurosugeons in Atlanta. He came out and confirmed that it was lymphoma based on frozen section sent to their pathology dept. By that afternoon we were up on the oncology floor ready to begin the journey into chemo and radiation that follows a cancer diagnosis. We were told that they needed a definative diagnosis to determine the type of cancer which should take about two days. That was over three weeks ago. His slides have made the rounds at Emory, Mayo and now off to Johns Hopkins. In the mean time he has been taking high dose steroids among many others meds. They finally released him on April 24 to continue steroids at home and wait for an answer. A follow up MRI showed remarkable changes in response to steroids. However, no one can deny or confirm that the tumors are malignant. It was suggested that I put him in the car and drive him to Duke University. Has anyone experienced this? We are living in limbo. My obvious concern is the undetermined cause of his central nervous system tumors. We are desperate for answers.