May 05, 2013 - 1:13 pm
I'm feeling more tired today than I expected. I was hoping I would "bounce back" this weekend more than I have. I finished 2 weeks plus a day of radiation on Friday. My mouth is drier and my throat has periods of pain, but not too bad so far. I'm already tired of being sick and tired and still 5 weeks to go.
I'm getting treatment on my vocal cords because the left cord is involved with the tumor and my voice is strained and raspy day to day. I saw the ENT on Friday and he said the tumor is definitely shrinking, the treatment is working. He said the tumor is no longer visable around the vocal chord.
A few days before treatment started I had an incident of difficulty in breathing which resulted in a trip to the emergency room and an overnight stay for observation and treatment with steroids. Half the treatment team recommended a trach and the others said no, go ahead with treatment and get the trach later if necessary. Ultimately that was our decision. Otherwise treatment would have been delayed 2-3 weeks to allow the trach to heal and get simulated again.
I'm hoping the fact that the tumor has shrunk and is no longer visable relative to the left vocal cord is a good sign that there won't be swelling there. This week will be tell the tale and I'm hoping and praying to get through without the trach.
Otherwise the week has been a success. I'm staying well hydrated and kept my weight up, might have even gained a pound or two. Last night I tried out the feeding pump and it worked great. Having heard some stories of difficulties in eating later in the process, I'm really happy to have the feeding tube available.
You all really helped me get focused last week. I still find myself projecting out about possible outcomes by am getting better about reeling myself back to today.
Thanks for all your presense and support!