May 01, 2013 - 2:53 pm
Hi!! I was diagnosed with inoperatable neck tumor, Stage 4 Terminal...it's where my brain stem and spinal cord come together and 1mm away from internal jugular vein...it had spread to my Lymph nodes and lungs in Jan...on March 5th 2012 I started high dosage of 5FU, carboplatin and erbitux...the 5fu and carboplatin were given in 6 rounds 3 weeks apart and I have the erbitux every Monday...the tumors are gone but I have to stay on the erbitux as maintance. I am grateful for every day...however, I have been toying with the idea of stopping the erbitux beccause I am so exhaused all the time. I know I won't do it because of family and friends wanting me to fight the good fight, and I am, but I am so so tired...Any ideas to help get engery level up????
Appreciate any input...