Apr 29, 2013 - 9:01 pm
My one year post kidney surgery CT scan showed a bone lesion on my pubic bone. I was then given an MRI, followed by a bone scan, followed by a biopsy of the pubic bone and one of another lesion in my shoulder - they confirmed that they are RCC cells.
I am a male, 48 years old, my diagnosis was in January 2012, stage 4, my tumor was encapsulated in my left kidney 14cm, USA, white (Austrian), AB positive. I've had the following surgeries - Radical nephrectomy (1/17/2012), Colon Resection (1/17/2012), Thyroid removed (9/18/2012).
The Oncologist I am currently seeing is suggesting Torisel - he feels it has the most data around success in treating the chromophobe subtype.
I am very healthy otherwise with no symptoms of the bone lesions (pain etc.) and no fatigue related to the thyroid being gone.
Has anyone else with the chromophobic subtype been treated with Torisel? What other treatments have been used?
Any feedback would be great!