Apr 28, 2013 - 11:32 pm
Dear all ~ My partner Michelle was diagnosed a month ago with uterine carcinosarcoma/MMMT. It's been a rough journey, and only this week is she slated to begin radiation treatments after a planned surgery was cancelled at the last minute. (The tumor has gotten too big to safely perform a hysterectomy, according to her oncological gynecologist/surgeon. Hopefully the radiation will shrink it enough to operate.)
She's lately too overwhelmed to be online doing research and communicating, so she asked me to take this on. And I recognize that my asking about sexual side effects might make some people uncomfortable. But I have to do what I can. And this is a priority question for her. (I will be there for her either way, and am much more concerned for her survival right now than anything else.)
She's been unofficially diagnosed as stage 3. Statistics available are pretty scary/grim. We're both very worried on many fronts.
She wants me to ask about the sexual side effects of doing pelvic radiation. Does anyone out there have experience of getting these treatments and still, somehow, having a sex life? Sensation? The possibility of orgasms approaching what they might have been like before? I realize it's an awkward question to pose, and that many people might be uncomfortable responding. For Michelle, knowing that some pleasurable experience is still possible after all this what she's really looking for. Sexuality is an integral part of her psyche and she feels as though something essential about her life force will be destroyed with these treatments. Anyone out there dealing with the same? Any ideas that have worked for you to maintain a sex life after undergoing this kind of stuff?
Thank you for reading. We are so grateful for this community!