Apr 25, 2013 - 1:42 am
A BIG THANK YOU to ellamenno, Joe, P and Helen for asking about what's going on as well as a BIG THANK YOU to EVERYONE for your encouragement and support.
Today I rang the bell!
6 chemos and 30 radiation treatments officially ended at approximately 8:35am Wednesday April 24th, 2013.
Here's a pic of Marcia and I posing for the camera this morning :)
Although you may not see it with the smile I have on my feace in this photo, the last few days have been horrific. I had my lat chemo on Monday and it knocked me on my keister! The radiation has peeked as well as I can actually feel like I'm burning. Despite liberal use of Specia; Care Cream. my neck is pretty red, even a bit raw in places. Although I'm not peeling, it may be a matter of days before I get some skin burn symptoms and reaction that will require a prescription. The general fatigue, nausea and malais is the worse it's been.
My RO wanted to see me after chemo on Monday and he as well as the team was very concerned about the pain level and loss of weight I've been dealing with. He wasn't too happy about either. Over the last few days, the level of mouth pain has increased and thus I've been unable to consume the amount of calories to maintain my weight. The mouth pain is so intense at times that my fluid intake is suffering as well. The bottom line was that I needed a PEG. In order to consume enough protein and liquids to insure proper healing, a PEG is/was necessary.
Today, after I rang the bell and got a bag of fluids, I went to outpatient surgery and had a PEG installed. I had a slight complication which, with the help of one of the surgeons, on the phone, I was able to fix. Other than some soreness, I'm fine. I won;t be able to use it until Friday as it has to heal. That was the fix I had to do. We got in around 6pm or so. When I got to my room, I took off my short and noticed the area where the tube left me was oozing blood. The dressings were soaked. I cleaned and changed the dressings and by the time I woke up from my nap ( a few hours later), the wound was soaked again. I called the surgeon on call and got one of the two that did the procedure! He wasn;t too concerned and had me re-dress it and apply dorect pressure for about 10 minutes. He said it should slow down substancially or stop. If it didn;t, he said to come to the ER and have him paged. Sure enough the bleeding stopped! He'll be stopping in when I'm getting my fluids tomorrow morning to take a peek. Other than being pretty sore (after all, they did poke a hole in my stomach), I'm fine. The nutritionalist will be coming by as well to go over feeding tube usage and nutrition. The hospital will be prescribing a supplement to use with the tube (can't remember the name). Apparently, it is sent by USPS/UPS directly to my home. I'll be given a supply to last a few days until the package arrives.
So folks, that's the dealo! I made it. It was brutal but I survivrd. I accomplished my goal of getting through treatment without a PEG even if only by a few hours.
Positive thoughts and prayers