Apr 20, 2013 - 6:06 pm
I was diagnosed with MZL in my chest and mediastum in October 2011 and had 6 (monthly) treatments of Bendamustine and Rituxin. I've been in remission since last treatment in April 2012. My one-year CT scan (chest) showed a huge improvement and my hubby and I have been celebrating well to start year 2. After that news, my hemotologist asked if I had any other pain or issue; I told her that I've been going to see docs at the eye care center. Occasional slightly droopy eyelid with redness in eye. First eye doc said dryness of eyes and gave drops to use. When I went back because my eye was not better and actually getting worse (occasionally achy, not relieved by artificial tears drops, and mild headache above my eye) I went back to a different eye doc. Affirmed dry eyes and changed the treatment. My right eye has begun hurting more, eye drops do nothing to relieve, I'm becoming light sensiive - and grouchy because I decided I can't wear my contact anymore and have to wear reading glasses. My sight is a bit blurry. So ... my hemotologist is having me go in for a CT scan of my head next week with a focus on my right orbit. She doesn't think that it will turn out to be related to lymphoma, but didn't make a promise. I go to the Carbone Cancer Center at the University of Wisconsin Hospital and Clinics, and my hemotologist sees alot of patients with MZL. She said that lymphoma loves eyes and if my eye problem is lymphoma it is very treatable.
Just wondered if anyone else has had an experience with lymphoma in eye ...