Apr 17, 2013 - 6:47 pm
My husband (mid 40s) was recently diagnosed with agressive prostate cancer. This is the information we know so far:
Gleason score is a 9
PSA level is 252
Atypical cells in urine based on a cytology w/ FISH report
Prostate weight 120g
12 Biopsy Samples taken all 12 positive Average 85% involvement
CT scan: Negative
Bone Scan: negative
I am looking for any advice as you can imagine I am extremely worried. The whole process started when he was having a poor urine flow, constant urge to use the bathroom and a change in color of urine. After 3 months of test, 3 week series of Antobiotics, biopsy, etc we received the dreadful news. The urologist went through the normal I'm sorry to tell you... this is what was done ...and this is what was found... Then he asked if we were looking to have anymore children since I am in my early 30s and explained our options in the same professional tone. Once he was done explaining the details he is obligated to explain, he kind of changed to a little more human tone than DR. He explained that my husbands condition cannot be taken lightly, that although he can help us have more children if we want, we should really consider the degree of his cancer. He also went on to say that more than likely with a gleason score of 9 a PSA level of 252 and all biopsies positive it is likely the cancer has spread and is too small to detect. He also stated it is very rare for someone my hubands age(45) to have such aggressive prostate cancer and if we like he will refer our case to a urology oncologist because he is unable to determine the type of treatment to use because of his age. He said basically he is not giving recommendation on treatment, that the oncologist will give the first opinion of treatment and run any further test necessary.
I dont know if we should be angry at the dr or respect the doctors honesty. I did do extensive research on the urologist before my husband went and basically he is the best of the best in my area. So you can imagine when one of the best couldnt give us a recommendation on treatment, our hearts skipped a beat and we went numb. Absorbing all this information was so overwhelming we didnt even ask questions.
We are scheduled to go to the oncologist next week and are scared. We dont know what to expect at all. I guess I am looking for any advise on what to ask or any other test we should be doing. Or if anyone his age or close has been through this situation that can share their experience with us.