Apr 16, 2013 - 9:45 pm
Hi, all. Vin here with another update. First, a recap: Male, 43 years old. Diagnosed in April 2012 with advanced metastatic RCC (Stage 4/Grade 4). Primary tumor of 8cm in left kidney with mets in lungs (innumerable!), left adrenal, right kidney, right adrenal, and along the spine at T4. Radical nephrectomy on 5/25/2012 included left kidney, adrenal gland, 14 lymph nodes and a slice of my spleen. Started Sutent around 6 weeks later at 50mg 4 weeks on, 2 off. Just finished my 8th cycle and had my latest scan yesterday. Here are the results:
Lungs: "No suspicious lung nodule. Previously visable lung metastases are no longer seen" (NO LONGER SEEN! How about THAT!)
Left Kidney: "No local recurrence"
Right Kidney: "Stable scarring in the right renal midpoint at site of metastatic disease" (Note that prior scan indicated mets were "no longer seen")
Bones/Soft Tissue: "Paraspinal nodule at T4 is stable" (Note that my doc said it is now a "flat thing" that lost its depth, thus shrunk)
Impression: "Since 12/10/12 . . . No new evidence of metastatic disease"
Oncologist's word for it: "FANTASTIC!"
My advice? Fight the fight, trust in Sutent, deal with the side effects, and believe in survival. Also, look into and use Gerald White's MAARS program.
Statistically 50% of people with my diagnosis would have been dead for 2 months already. My doc (at Memorial Sloane Kettering) is talking about YEARS to go with promising treatments in the pipeline with a 3 to 5 year horizon for potential CURES. He extended the period between scans to 4 - 6 MONTHS.
Love to you all!!!