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COLORECTAL CANCER SPREAD TO THE ASCITIES

LC53
Posts: 1
Joined: Apr 2013

Hi  my husband was diag. in Dec. with Colorectal cancer stage iv that had spread to the omentum. He has had 2 cycles of Chemo.  Oxaplatan and Ceptabine. told yesterday that the chemo has not worked in fact the cancer is worse.  But his creatine levels are high and to go home and drink plenty of water and will check the levels next week.  May want to try another type of Chemo.  The Oncologist is not holding much hope because the first line of chemo. has not helped. Strange thing is that his CEA levels are going down.   She told him with no chemo he has about 1 year to live. We are devastated. Getting a second opinion not a option, as when he was in the hospital in Dec. had seen someone else who pretty much told him the same thing with out any testing. Would appreciate any info on our situation.

fighting_ big_c's picture
fighting_ big_c
Posts: 60
Joined: Mar 2013

So sorry to hear this. What is the Ceptabine for? My mother has the same thing, mets to the omentum. She just finished her 1st round and will start her 2nd cycle tom. The doctor will add Avastin to her regimen tomorrow following her post surgery last Feb. 21. Do not lose hope, try to go to another oncologist. Will be praying for your husband.

abrub's picture
abrub
Posts: 1543
Joined: Mar 2010

are common in Appendix cancer, and somewhat treatable.  Your husband needs to be seen by a colorectal specialist, not a generalist oncologist or oncologic surgeon.  He needs to get to one of the major cancer centers (I go to Memorial Sloan Kettering in NYC) to find out his treatment options, and not just be written off.  While I didn't have ascites, I did have lots of mets to the omentum, and general peritoneal seeding. I'm now 6 years out from diagonsis, and in full remission for the last 5 1/2 years, and hopefully for the long term.  What part of the country do you live in?  Push your insurance company, and get him to a top cancer center.  They may be able to help him.

Alice

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Alice if you don't mind me asking, how your docs get rid of the omentum & peritonal seeding?  Regards, Ron

abrub's picture
abrub
Posts: 1543
Joined: Mar 2010

Ron,

My surgeon removed my omentum and every visible sign of tumor/seeding.  It was a major debulking surgery that included resecting my colon in 3 places, and removal of bits of my peritoneum as well as removal of my omentum, part of which had already been removed during the surgery when my cancer was discovered (a hysterectomy for fibroids - surprise!)  The initial surgery included a total hysterectomy - removal of all "female parts", my appendix and part of my omentum, and was done at my local hospital by my gynecologist and a surgical oncologist that he called in.  After that, everyone knew I needed to get to an expert. 

My second surgery, at MSK, was a big, open surgery during which my surgeon manipulated everything in my belly, rolling parts in his hands, and using magnification to find tiny tumors.  I should add that he reconnected my colon perfectly, such that I have a normally functioning bowel (and I sing his praises every time I take a poop!)  Following this surgery, I had a series of intraperitoneal chemo treatments with a form of 5FU (FUDR) to address any tumor cells that might be lingering. 

Alice

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

I am stage IV with mets to omentum and peritonium.  I have been on Folfiri + Zaltrap since October 2012, just did my 14th round today.  After 2 rounds acites disappeared and the disease is currently stable (not growing).  Everyone is different but if you and your husband are not ready to give up, I would recommend finding another oncologist who will keep trying for you.

My best to you,

Ron

janderson1964's picture
janderson1964
Posts: 1830
Joined: Oct 2011

I dont see how he can be so negative after only two treatments. How does he know for sure it is progressing. You didnt mention a recent scan or testing. Get a third opinion. It is too early to give up.

smokeyjoe
Posts: 1428
Joined: Feb 2011

I have spots too,  I was on folfiri for many many months .... kept those spots stable, had a 10 month break from chemo. with no progression,  then  scans after 10 months  showed progression... went back on folfiri with avastin but it didn't work , so now I've been switched to Folfox.   I haven't had ascites,scans mention no ascites seen.   But they did test my fluid in my abdomen during the surgery and showed nothing in the fluid, that was over two years ago.   I would keep up looking at treatments,  not sure how they know there is progression unless he's had further tests or scans?   Are these ascites causing him discomfort, I think it can be drained, but apparently it can build up again.      

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