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Chuck Started the Nivolumba/IPI Trial Today

AprilandChuck's picture
AprilandChuck
Posts: 95
Joined: Feb 2013

Hello all... We met with Chuck's Oncologist.. today to go over the scans from last Thursday prior to starting the trial... The liver mass shows a large percentage of growth since his last scan.. that scan had showed a large amount of necrosis(death) it is now on the move again.. so he is no longer thought to have a partial response to HD IL2 but a small unsustained response...He was randomized into the 3mg of Nivolumba and 1 mg of IPI which is what we were hoping for..we are very thankful... his Infusion went good.. now he is home and tired from sitting lol :D We meet with the Doctor next Monday for an exam and  for labs and back on the 29th for another infusion...Praying hard this works and we are very thankful he got into the trial..now its a wait and see...Hope Everyone Has A Wonderful Evening!!

Mikeyswife
Posts: 31
Joined: Mar 2013

Very glad to hear Chuck was radomized to the arm that you were hoping.  I was on a clinical trial for breast cancer 19 years ago, and I remember very well the excitement of being randomized to the arm that I had hoped.  Sending prayers your way!

 

Karen

foxhd's picture
foxhd
Posts: 1872
Joined: Oct 2011

I think I also lived the excitement you guys are going through. And look what it has done for me so far. Best of luck.

Fox.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Best of luck from across the Atlantic, April and Chuck. 

Fox's story is always inspiring but it's also so cheering to hear a story from someone commenting 19 years on from a cancer trial, like Karen!

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

dup

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

 

 

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

April -- just a little background about John starting his Nivolumab/Votrient trial. He also had just finished IL2. I believe his initial IL2 response was labeled "mixed" but it did not warrant continuation so he started going through the qualification phase -- physical and insurance wise -- to get into the Nivolumab/Votrient trial. Lots of these tests and meetings did not require meetings with Dr. Hammers, his oncologist. But after a couple weeks of this, Dr. Hammers showed up with John's latest scans in hand and with a concerned look on his face. He said to his research assistant, "we need to get him into treatment quickly." His scans showed significant growth. While the Dr.'s concern was evident and scary, from that point on, the trial process moved quickly and John was in the trial in a week's time.

And those trial drugs went to work. I understand after the HDIL2, it's easy to get discouraged. The HDIL2  is a tough ass treatment and knocked John down to his most vulnerable condition since before diagnosis. He was wiped out--no energy, weight loss, miserable mentally, etc. etc.  In looking back--I admit to being a skeptical about the next round of drugs. But it was entirely different -- easier treatments and far better results. Plus we've both come to believe his great response to the Nivolumab/Votrient trial may have been promoted by his earlier HDIL2. There are some oncologists/medical researchers that believe in the latent benefit of HDIL2, and John and I have joined that group. 

I'm expecting great things from Chuck and am anxious to follow his progress. But please--I'm a big animal lover--keep him away from the goats.

 

AprilandChuck's picture
AprilandChuck
Posts: 95
Joined: Feb 2013

Alice..our oncologist and we also believe in the lasting affects of HD IL2 so we are hopeful it helps boot the affect of the new treatment..its just terrorifying..when something that was supposed to be dead springs back to life and grows...it takes a bit to digest...lol we are also animal lovers but Chuck learned his lesson goats are gats not dogs :D but in that spirit I offer up the following web site for you alls daily laugh..... youtube  top ten goat addition songs...we laugh our rears off and I actually think it kept Chucks blood pressure down during infusion yesterday lol http://www.youtube.com/watch?v=igHaMOX_paM the actually link :D

NanoSecond's picture
NanoSecond
Posts: 515
Joined: Oct 2012

That was so much more refreshing that all those darn cat videos!

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