CSN Login
Members Online: 16


Galrim's picture
Posts: 300
Joined: Apr 2013

Seems that I get slightly different answers depending on who I ask and what I read, so here goes to all you laymen :-)


7,6 cm

Grade 2

nephrectomy August 2010

just had my fifth check/scan without any indications of a relapse or spreading

45 years old and generally very good health


My urologist says Im now so much below the radar for a recurrence that I might as well win the lottery

My family doctor says theres a ten percent chance of a relapse

My oncologist doesnt like numbers but just keeps repeating the risk is "low"...


what to think?

NanoSecond's picture
Posts: 656
Joined: Oct 2012

I vote for your oncologist.

Now ask him how to make that risk even lower.

Galrim's picture
Posts: 300
Joined: Apr 2013

My oncologist always just turns it into the positive aspect without being precise, meaning if I say "I know theres a risk, how can we/I reduce it besides the obvious fact of leading a healthy life?". His answer is always in the line of "Well, youre only grade 2 and it was almost a T1 and youre young and yaddayaddayadda"...bottom line I wont get him to define "low" without stcking a gun to his head and I in a way dont think I can blame him. Sometimes is just calming to have a number you can hang your hopes on I guess...

icemantoo's picture
Posts: 1848
Joined: Jan 2010




Your family dr. is way too high.




Galrim's picture
Posts: 300
Joined: Apr 2013

Icemantoo, from what I could dig up on the net (havent read statistics for a long time as I know they never describe ones individual situation) it looks like youre right. 

From what I can find approx. 30 percent who didnt have spreading at nephrectomy get it later, however 80-85 percent of those get it within the first three years. Grade 3/4 has a four time higher risk. And I assume, this I oddly havent found any statistics on, that large T2 and T3 have an increased risk. I was a very small T2 (borderline T1), grade 2 and Im almost at the three year marker.  Looks like my family doctor just threw a number if you do the math on the above...

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network