Apr 11, 2013 - 5:54 am
The good news is that the result of the test is back and I am a candidate for Temozolomide (= Temodar = TMZ). That doesn't mean it's going to "work" -- but the test identifies those for whom it will NOT work.
As some of you know, I actually had one cycle already, while I was waiting for the results. I didn't want to be on no chemo for very long, and the side effects of TMZ are pretty mild.
The bad news is that my CEA is WAY up. Above 300. I have never had numbers like that. And, my symptoms have gotten a little worse (pain in shoulder and left hip). I may have some radiation to reduce pain in either one or both but decided to postpone -- because I have a really good friend coming to visit me next week and I want to be able to PLAY!
Just got back from a one week holiday in Hawaii so I really can't complain about anything right now! I was able to take gentle walks most days, go out to eat, bit of shopping -- and a lot of sitting and talking with ones I love.
Just had cycle #2 of TMZ yesterday -- side effects not bad at all. As some of you are no doubt aware, this is a drug traditionally used with brain cancer but now having some success with colorectal cancer patients -- not sure if much published yet