Apr 10, 2013 - 5:57 pm
I have just joined this forum today. There does not appear to be anything here in Australia that offers similar experiences.
My story started in May 2011 when I had an ultrasound for occasional pain in my right side. This was immediately up with a CT scan which revealed a 20cm mass on my right kidney. Radical nephrectomy was done 4 weeks later. No mets which was fabulous and was offered a place on the SORCE trial. I believe I was on the drug for 12 months due to several side affects - hair loss, diarrhea, painful feet and fatigue. A few days after my 12 month on the drug I believe I was then taking placebo as I had immediate cessation of all symptoms. 18 month CT scan a couple of weeks ago has now revealed a lesion on my spine for which I commence radiotherapy this coming Thursday. I'm not sure of my treatment options after completion of radiation and will be discussing with my oncologist soon. Anybody have a similar experience?
This cancer journey has been the most trying time and I try to stay positive for the sake of my teenage daughter who also lost her father (2 weeks before my diagnosis) as a result of metastatic melanoma. Life seems pretty unfair at the moment so would appreciate any positive stories.