Post Papillary Carcinoma of the Thyroid - scared now -recurrent?
Joined: Apr 2013
Apr 09, 2013 - 7:56 pm
Hi everyone, new here, trying to post this properly. In 2002, I was diagnosed with Papillary Carcinoma after years of undiagnosed symptoms but I did have Hashimoto's . I was taken seriously when the biopsy needle refused to enter the nodule. I had a Total Thyroidectomy with a Neck Disection and removal of about 150 lymph nodes which were (diseased/deceased). Parathyroid was damaged and I had IV calcium treatments for 5 days and then daily pills after. I was put on 100 mg of synthroid. Determined that was too low and was upped to 200. for a couple weeks. I had 3 RAI treatments across the next 2 years before I was declared cancer free. 6 years later I had to have the left submandibular gland removed because the RAI'S had turned it to stone. I am almost 9 years cancer free.
Today, at my ultrasound they found a suspicious lump .. they have no idea what it is. Have to wait and see till they do the report. A few hours later, my family doctor phones me and informs me my TSH which is supposed to be suppressed and below .5 is now sitting at 50. I am 50 times the limit. My nightmare is beginning all over again.
I have not been sleeping well, my skin is so super dry with my legs looking like a desert with cracks in it. I know I am very hypothyroid right now. Not good. I started putting weight back on. I am currently 100 pounds overweight.
So needless to say, I am scared until they get back to me with all the results.
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