Apr 08, 2013 - 2:41 pm
Hello, my 82 year old mother was diagnosed with hypopharangeal cancer T3 N0 October 4, 2012. She was an alcoholic most of her life, she fought it and was not a bad mother but never overcame the disease. She has managible emphysema from smoking which she quit 10 years ago. She had a debulking of the cancer in early October and made it through all the radiation. She had swallow therapy throughout her radiation treatment on January 9th, no chemotherapy. She has been on complete PEG tube feeding since surgery, she could swallow a little in the begining but was aspirating. Her PET scan came back all clear. Last Thursday she went to have the esophagus dilated. The scarring is so severe they were not able to get through. They went from the mouth down and from the PEG up. No lumen(opening) was seen. She has always been extremely small, currently she is probably barely 5 ft. and 90 lbs. They did say they would try to dialate again in six weeks. She is not really the kind of women that is the wake up and smell the roses kind. My father 83 is alive and pretty well for his age. I believe my Mom would like to to dialate again, but if that does not work I do not believe she would like to live. Her back has been acting up at L4 and we are going to that doctor later this week. My mother will not have anyone for help in the home. They are managing and are quite cognisant but she is now so depressed and negative about everything. She has been on Ativan(help with withdrawls) and very small amounts of hydrocodein, but since her most recent surgery last week they told her take whatever she needed, so she has been taking more hydrocodein and to a very small addict, the effects are not very fun to deal with. My poor Dad just cannot take it anymore. I work, my husband has his own businesss and live 45 mins away, but I still manage to take them to all there appointments and an emotionallly there for them 24/7. I am worn out, I cannot imagine how they are surviving. That is it in a nutshell.
Any thoughts on what the chances are of getting through the scar tissue to dialate? If that does not work, and she wants to die, how can I help her. I know that may sound morbid, but I know it is what she wants. She had a great fun life and has given this all she has, so I do not blame her one bit. What should we expect next. I am sorry that I am just coming her asking for support without offering anything at this moment. Please if anyone has input it would be truely apprectiated. Thank you, Amy