Apr 03, 2013 - 2:19 pm
I am new to this forum. I am from Stockholm, Sweden, was born in 1944, and I was diagnosed with CNS lymphoma in March 2012.
I got three treatments with cortison, cytostatica (methotrexate and others) and antibodies, and so my tumour vanished. My bone-marrow stem cells were then harvested and frozen, and in August 2012 I got a high dose cytostatica treatment according to the BEAM program (full dose) to take away possible invisible micrometastases (small daughter tumours), and then I got my stem cells back to restore my bone-marrow which was detroyed by the high dose treatment.
Since February 2013 I take cytostatica tablets with 250 mg of temozolomide for four days every month as a preventive measure against a relapse. This treatment is planned to continue for at least two years.
Now, I am interested in prognosis and survival and relapse statistics for my disease and my treatment. I have looked at Internet but found only old information, and the modern treatment that I got is probably better and more efficient. My doctor is very good but does not like to talk about these matters.
Where can I find the information that I want? I would be grateful for your help.