Apr 02, 2013 - 2:53 pm
I want to thank everyone for their support and update you on what is going on and some strange additions:
-Brain scan and Bone scan taken on April 1st both came out normal
Here is the summary of opinion #1 (my main doc)
-7cm mass on left kidney, mass on side (about a small golf ball), related lung nodule
-surgery to remove the kidney and side mass; later surger to remove piece of the lung
-preventative treatment of IL-2 to clean out and cure any microbes floating
Here is the summary of opinion #2 (today)
-7cm mass on left kidney, mass on side, 2.5 inch lung mass with multiple bi lateral leisons
-surgery to remove the kidney and side mass; no lung surgery
-start immediate chemo with a new drug (didn't name it), said that tumors only shrink with chemo and that IL-2 is "last year's drug" and they want to treat me with this year's drug since it will give me the best chance to survive. Also said that they do not think I will last 15 years
Now both opinions had access to the same scans and reports, yet it seems like they have totally different outlooks. Neither opinion was from an oncologist. Opinion #1 was collectively from the radiologist, general surgeon and urologist. Opinion #2 was from a urologist and physicans assistant.
First of all, how can the opinions be so different? Second, how can #2 dismiss IL-2 which is the only drug that has been known to CURE the type of cancer I have? Third, how can #2 say chemo is the only way to shrink lung tumors when chemo does not work on RCC? How can #1 say there is 1 nodule in the lung while #2 says it is a mass with multiple leisons? I am so confused and even more devastated than I was before.
At today's opinion (#2) I felt like I was a lab rat and felt like they tried to sell me on some new experimental drug to see if it would work. Ironically, they asked what the other docs said before telling me their opinion. I wanted to see their opinion without knowing the other one. They then told me they talked to the oncologist and to see him upstairs right away. Now I thought we would go in quick to chat for a few since the docs spoke....well we sat for 15 minutes then we told he has other appointments and that it could be hours until we see him. I said I will reschedule and left. It made me feel even more that I was being sold in a clinical trial.