Mar 29, 2013 - 8:27 pm
My husband of 25 years was diagnosed with tonsil cancer withlymph nodes involved on March 8. He has had a lump on his neck for 9 months before we finally got it checked. I must say the news of this was devastating.
We have since gotten in at the University of Michigan Hospital and met with the Oto, RO and dentistry. MO is next week along with Rad Simulation and mask fitting. He had a neck biopsy On March 18 for confirmation and had tonsil biopsies yesterday. They have also confirmed a small spot on back of throat PET scan confirmed nodes on other side of neck also. Clear below neck.
They are not doing surgery just Rad/Chemo. We know 35 Rads not sure but sounds like weekly chemo. Dentisty has to pull one bad molar and his front tooth. The front tooth has been dead for years and is not a problem for radiation but is for chemo because of low grade infection that stays in that tooth.
He doesn't get teeth pulled until April 9 and then we have to wait to weeks for radiation. The wait to start is nerve racking.
We do know that it is T2-3N2bMO SCCA. We will find out HPV or not from yesterdays biopsy although he is a smoker.
We both made the mistake of looking on the internet and I spent a entire week crying until I accepted this is what he has been dealt.
I now find all of you wonderful people who are living proof that it is not a death sentence and read many posts about what to expect and how I will be able to help him through this nightmare. You are all angels here on earth to share your stories of hope while having to go through this yourselves.
And what is NED?